Restless legs

[Matrix]

I was wondering if any fibros out there get painful restless legs and if so have you any tips for me . Last night I was desperate with pain had no sleep until 6-30 this morning and was up again at 9-00 so I could sleep tonight , I must admit I'm very tired . Thank goodness I had to stop work because of health because I could not have worked today .

[rosewine]

I am sure other members if they are around will come up with some good tips. I know several people take medication for this. I know when I first started my GP tested me for iron deficiency as he said in some people that can be a cause but mine was fine. I have found that if I lie on my back putting a soft cool pillow underneath my legs helps or between my knees if I lie on my side. I know magnesium oil spray has helped some but I tend to lightly massage my legs with a combination of some pain killing gel and some freeze gel. I don't know why but the coolness of the freeze gel seems to work enough just to get them to settle down. I also get up and do some gentle stretches and listen to music as I used to lie there thinking about it and found soothing music seemed to help.

Do hope that you can find something that helps as it is a horrible feeling.x

[Matrix in reply to rosewine]

Thank you so much for your reply . I do some of what you do and I agree the cool things work best Thanks again .

[korakes in reply to rosewine]

My gp also thought it was iron deficiency but tests were ok but I did take iron tablets and they seems to stop might be coincidence x

[Matrix in reply to korakes]

Thank you

I have heard it can be due to iron deficiency and I do have problems with that .Last night I took some tablets that I take for trigeminal neuralgia I took them every four hours it did the trick .

[Hidden]

Hi Matrix

Epsom salt bath before bed helps me but it is fitting it into a routine that is the hard thing! Jax

[Matrix in reply to Hidden]

Hi thanks for replying I have some of that in the bathroom so if the tablets stop working I will give it a go . Thanks Jax

[Ian123]

Searched restless leg on Health Unlocked

healthunlocked.com/search/r...

[Matrix in reply to Ian123]

Bless you Ian will go check it out when I have done on here.

[TheAuthor]

Hi Matrix

I am so genuinely sorry to read that you are suffering and struggling with RLS, and I sincerely hope that you can find some resolution and relief to this issue. I get this problem on occasion but not frequently. The only thing that I have personally found that works for me is to elevate my legs. I have an electric adjustable bed and I raise the lower half of the bed and it takes the sensation away.

I want to genuinely and sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Matrix in reply to TheAuthor]

Ken that sounds like heaven and a easy solution,I do not have that sort of bed though but there are other ways I could raise my legs I suppose .Thanks for your support

[TheAuthor in reply to Matrix]

I want to genuinely wish you all the best of luck.

[Tomcat98]

I take Pramepexole prescribed by GP about an hour before going to bed. Works like a miracle!

[Matrix in reply to Tomcat98]

That sounds like a solution ,I'm embarrassed to ask for even more meds every month I have 17 items oops no it's 18 . Thanks Tom at

[sharon1968]

Hi I allso suffer with this problem not just at night but all day to I tried different medication nothing works but going back to doctors so I truly understand how U feeling I find it hard as I still trying to work sorry not much help hope U find help

[Matrix in reply to sharon1968]

I also have it in the day when I'm relaxing it just niggling on .Its no life and I don't know how you work you poor girl ,you must be exhausted I know I am but at least I'm at home .I had to stop working because the pain was just terrible so I know just how your feeling bless you .

[sharon1968 in reply to Matrix]

Hi thanks for the reply I just hot back from doctors he put me on sick and given me morphine patches got to go back in 2 weeks nothing working I have the pain all over my body it like today the pain real bad all over felt like a idiot burst into tears as I had enough do u find that people dont understand u there think u telling lies in how u feel he allsp on bout putting me on antidressing tablets as I so down it nice to know I not on my own

[Matrix in reply to sharon1968]

Sharon, bless you I know just how you feel . Please take the antidepressants , my doc just put me on them it's about four weeks and if I didn't have this pain everywhere I think I would feel better , I have more motivation and I have stopped crying . Well I nearly cried the other night when legs were so painful. In the main they don't understand I have one friend and my husband who have both Sen me at my worst . They don't see the drugs you have to take just to have an outing . Kids don't understand , but I think you have to have it to truly understand. You rest up now and take things easy and go and get the antidepressants they will help you . X I'm here if you need to offload anytime xx

[sharon1968 in reply to Matrix]

Thank U for replying I hot to wait 2 weeks before he give me antifressents as I just started on moerphine patches I been real struggling with this for a year people look at U and U look ok but there dont know what U going through I struggling to lift things carry shopping and the fatigue is teal bad but i got to say my doctor is real good he said going to refer me to the pain clinic if that no good a secound opion it nice talking to some one who hot the same thing wrong do U have a real bad sore mouth and i get bad migraines there time just to move my eyes are bad pain the eyes there last couple of days i do feel quilty going on the sick thanks for listening to me

[Matrix in reply to sharon1968]

Oh sweetheart I'm so sorry for you , and as I said I don't know how you manage to be working . Yes my mouth is very sore I take vitamin B12 for that from the health store . My eyes hurt I have Blepharitis and dry eye . Let's face it we are a mess . I understand people don't understand how can they its not happening to them , if they can't see our pain and exhaustion and they don't . I can't lift carry or do anything much . I'm happy to chat with you , I know how bad it can be , I'm blessed I have an amazing husband xx keep your chin up

In case you wondered I am a woman . X

[sharon1968 in reply to Matrix]

Hi it so good to chat to some one my boyfriend is great as he git a serious illness to so he does understand I take b22 plus vitamin d and iron from the doctor as my body won't absorb theses we are a mess with my eyes I have double vision and the muscle going like jelly at back of one eyes do U when U first started with these symptoms I was 9 I was involved in car accident serious one the pain in legs started then but my mum said it ws growing pains I remember from 16 going doctors yelling them bout pain but just said it ws in my head do U have problem with your stomach to I got telex problem and hernia allsp notice have allergys and problem eating certain food is there any. One else in your family suffer with this I been uo all night as pain all over is bad my boss had a go at me yest cause I went sick telling me she going to loose her contct I work as a cleaner she said if not back in 2 weeks work going to some one else then she said I can't pay U dick U not paid enough mationial insurance but she rang me back I said U got to pay me I earn more than 112 a week it says nothing bout nationial insurance I told her I read up on it was going to hmr then she said in next breath only pay U for 3 month my boss. Not telling truth I dont need this stress on top of this she was ok by phone was put down she guesses I looked into this

[TheAuthor in reply to sharon1968]

Hi sharon1968

I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

[Annieblue]

Hi Matrix.

As if sleep wasn't difficult enough! My GP has given me Amitriptyline, but I don't find it works. What does work for me is cold shower on my legs and feet, or putting them under the cold tap in the bath. This works for me every time, though sometimes the thought of getting out of a warm bed to do it isn't great. If you are like me though I can feel it coming on before I ever get to bed and do it then.

Hope you find something that helps x

[Matrix in reply to Annieblue]

I take that too for sleep ,it dosent work now ,well I'm hurting with it now I will go give it a go whilst I'm home alone .xI have had no natural sleep since I was 11-12 years old and I'm so tired I could cry some days but usually I manage to be an upbeat person ,I don't know how but I do .If only fibro was one thing but it's not is it .Thanks for your reply .

[Telynores]

See you Dr, 20 years with this problem I finally was prescribed Clonazepam after a sleep study 20 years ago. Wow, 40 years since the problem first reared it's ugly head

Good luck.

[Matrix]

Thank you it's so horrible isn't it . I think I'm going to have to go to doctors which I hate , I have so many meds to take as it is but this thing is just so awful . Thanks so much for your reply .

[Natura]

Matrix...i take magnesium supplement before going to bed. Use to get terrible cramping too and charly horses...mag helps

[nadine111]

if none of the above helps, you might ask your dr. about reglan. worked great for me. i know how you feel about asking to take yet another medication. i take about the same number of meds that you do. i've gotten to the point that if they can help me they are worth taking. it is not fun to have restless legs on top of all the other illnesses many of us have. you need sleep and if have restless legs that just isn't going to happen. best of luck.

[Matrix]

Hi , thing is I'm a bit worried asking him beast grids bit serious and I find him a bit difficult to talk to . I know I'm going to have to go it's just when . I hardly sleep as it is but it's so horrible as you say on top of everything else we have to put up with I can do without s can anyone who has restless legs . Thanks for the chat , hope you have had a good day . X

[maggi999]

Hi Matrix,

I've had good results with Epsom Salts baths and a prescription for Nortriptyline from the GP xx

[Treewade]

I get painful legs that I have to keep moving all night. Unfortunately I also get cramps so I be just had to have my oldest daughter pull me out of bed again so I could walk it off. I can't remember last time I had real sleep. Sorry xxxx

[Matrix in reply to Treewade]

Don't be sorry we all have a lot to put up with . That movement your talking about Is restless leg syndrome and it's a pain sorry you have it too , hope you feel better soon x.

[Shazzzy]

Epsom salts and vit d helped enormously, all the best

[Treewade in reply to Shazzzy]

Thank you I'm on vit d will get some Epsom salts today 😃 Xxxxx