In so much pain, feels like flare will never ease :(

I have been in a bad flare for about 9 weeks now. No sign of it easing. The pain is everywhere too - my entire back, legs from hip to toe. Missed an entire 7 week placement (only 6 months of nursing degree left). Don't know what else GP can do - tried loads of different meds and waiting to start a pain management programme.

I'm just desperate to finish uni and get a job but the pain, fatigue and lack of sleep make it seem impossible to do the things I want/need to do :(

Feel like I'm loosing myself - I'm so bad tempered all the time cos of pain - don't know how my poor husband puts up with me :(

Sorry to moan, I'm just so fed up and the thought of dealing with this condition for the next 50+ years is terrifying!

Becky xx

12 Replies

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  • hi Becky, sorry to hear you are in such pain. have you been offered physio or hydrotherapy? they might help.

    I have a memory foam topper on my bed that eases the pain.

    I'm sure others will be on soon.

    regards,

    hamble :)

  • Thanks Hamble, my physio isn't very good and hasn't suggested hydrotherapy. I will be seeing a specialist physio when I go to the pain management program so hopefully that will help. I have a memory foam mattress topper too and it definitely helps.

    Thank you for your help

    Becky xxx

  • Hello Becky isn`t it awful when the pain just won`t go away? I have a heat and vibration pad, the type designed to fit in a car, I find that it helps most of the time,

    I hope that you will soon find something to help you so that you can follow your dream.

    Hugs sue xx

  • Aching a lot at the moment. I keep trying to trim a short length of hedge out front but with the pain in my arms I can only make three cuts before I have to put the shears down, This the third attempt but I will do it :) I just have visions of it becoming like the severn bridge. That by the time I get to the end I will have to start again at the other, :D

  • Hi sue, thank you for your reply and kind words. I can't handle heat very well because I also have PCOS and am boiling hot most of the time. I saw my GP today and found out my vit D levels are less than half of the minimum level needed. Am hoping that the vit D tablets and pain management program will help.

    I hope that your pain is not too bad at the moment.

    Gentle hugs

    Becky xx

  • Hi Becky,

    Know how you feel :-( it's awful isn't it?!

    I am trying to do a degree too and have missed so much this year for lots of reasons but my fibro flared up really badly about 6 weeks ago and I've been pretty much bedridden since and in agony, missed all my deadlines and exams and now have to do a whole load of re sits before August!

    Haha I'm also a grumpy cow sometimes with the pain :-) don't worry, you're human, and it's hard to keep your chin up when you're so sore all the time. I understand where you're coming from though, I have no idea how my man puts up with me either?! Poor guy, he's having to do everything round the house and with the kids just now, although I try my best cause I get so blinking fed up staying still, it's not like it's any less painful when I don't move anyway!

    My doc said I was low on vitamin D too (apparently a side effect of living in Scotland haha) but told me to try and get 20 minutes of sun as many days as I can, maybe that would help you too? Unless it's raining...

    I hope you manage to get pain relief that works and hope that your family are understanding. And don't worry about moaning :-) we're here to be able to moan to each other!

    Soft hugs, Jess xx

  • Hi beckyglen

    I am so sorry to read that you are suffering in this way and I genuinely hope that you can find some resolution and relief to your situation?

    If your pain persists or increases it wouldn't hurt to prompt your GP a bit and have a moan, after all, they may get on to the pain management clinic to see if they can make you a priority?

    I want to wish you all the best with this.

    Ken x

  • Hi Beckyglen, so sorry to hear the difficulties you are having at present. I just wanted to let you know i was told i had very low levels of vit d, i live in Scotland, but have been taking fultium for 9 months and it has really improved the muscular pain i was in and got rid of restless leg syndrome i had at night. It is only thing i have taken over years that has improved situation, rather than masking it. It also started work7ng immediately. Good luck with your studies.

  • Thank u Shazzzy,

    I have been living in Scotland for about 5 years now but not sure if that is cause of low vit d. Doc put me on tablets - think it might be the one u said, it's little blue tablet. Got to take 6 tablets a day for a month then go onto lower dose. I was doing really well on my course but started to find the long hours on the wards too much. I won't be able to graduate with my class in sept now but just going to focus on getting as well as I can over the next couple of months whilst doing the pain management program. I'm glad that the vit d tablets helped you!

    Gentle hugs

    Becky xxx

  • Are you eating enough natural fat?

  • I am not suprised its the long hours and hard work of being on the wards that triggered your flare. It is the opposite of what you need to do to maintain your health with fibro. You need to figure out how much you are capable of on a daily basis and stick to whatever hours or activity your body allows, begore it triggers a response. It is very much trial and error. I have also found that certain foods will triggrr pain as well, chilli or tomatos in any form, white flour, white potatos, white pasta aggravate ibs, so you could try an elimination diet to see what works for you. I moved to Scotland about 9 years ago, used to get more sun growing up in England, so I often wonder about vit d levels. Best wishes

  • Becky sweetheart, I feel your pain. After you go to the pain clinic and find the right medicine, life will get more bearable. You'll still have pain but it does make a big difference!!! Hoping you feel better soon!!! xxx Mitzi

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