Fibro survival kit: So its been a... - Fibromyalgia Acti...

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Fibro survival kit

Minx88x profile image
22 Replies

So its been a wheelchair day for me today. Not too good. So I decided to make my own flare up kit. It got me thinking if anyone else has on or if someone even sold them so I got googling. Turns out quite a few people have one, do any of you have One and what's in yours?

I put microwave wheat packs

Disposable heat pads

Pain pills

Twisty cushion

Eye mask

Headphones

Zentangle workbook

Adult colouring book and pencils

Soft blanket

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Minx88x profile image
Minx88x
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22 Replies
Betty67 profile image
Betty67

What a good idea. I think i might add rescue remedy or lavender oil.

in reply toBetty67

A thermoflask with hot drink and a bottle of cool water to keep you hydrated :) Mabe a pkt of suger free sweets aswell x

Betty67 profile image
Betty67 in reply to

Not the ones that make you "run" to the toilet. :-D

in reply toBetty67

Oh nooooo, only a few sweeties to keep your mouth lubriated, we don't want to end up with looooooooose poo :) xxxx

landslider profile image
landslider in reply to

do you guys suffer from very dry mouth too - I thought that was just me - I constantly feel like I have the sahara desert in there lol

I keep mint humbugs in the car xx

in reply tolandslider

O yeh, big time, the medication can cause this :) xxx

Fibrofoggiest profile image
Fibrofoggiest in reply to

My dentist told me to chew sugar free chewing gum to help, and surprisingly it really does work 👍🏻👍🏻😉😃

in reply toFibrofoggiest

Yeh, that does help Foggy, keeps the mouth feeling fresh also :) xxxx

landslider profile image
landslider in reply to

I may have to get me some - chase them dragons away that jump out when I open my mouth ahahaha xx

RayB profile image
RayB

Door double bolted,,

coal for the stove,,

phone off the hook and curtains pulled with limited soft light,,

a sign on the door saying "No callers without appointment" Just incase they can't read or think they are a special case, I also have a bell that is lit up but has a switch to turn the sound of and I don't believe in letterboxes or knockers,,, why would you put a hole in or give them something to bang what was a perfectly good door!

Ray

Piggysqueak profile image
Piggysqueak in reply toRayB

Hello Ray B

Nice to meet you and everyone else to

I defenately agree with your reply

Why won't" They leave me alone "

It's how I recover rest peace and comfortable bed with loads of pillows books,iPad and tv

I need to get that door bell

It really made me laugh

Take care

Squeak 🐷🐭xx

RayB profile image
RayB in reply toPiggysqueak

Oh Piggy, I can be in so much pain that I would probably accidentally gnaw someones head off and wouldn't even notice the blood splatter,, they really don't want to be around me when I'm in that state, and the well meaning talk just sets my teeth on edge!

Ray

Piggysqueak profile image
Piggysqueak in reply toRayB

DITTO RAY

I wonder if we are related lol

Or just both in horrid pain

I wish family ,well a certain sister in law who wants to check herself I'm as I describe !!!!!!!

When will they learn to leave me until I ask for help

Pain and depression are best friends and therefore gnawwing heads of is normal behaviour me thinks

You have cheered me up Ray

Love your sense of humour

Squeak 🐷🐭xxx

landslider profile image
landslider in reply toRayB

such witt hahaha lol - ou have brightened up my day

I could just imagine you on a TV show - like Little Britain hahaha x

landslider profile image
landslider in reply toRayB

Hahaha - I love your way of thinking - never considered the door thing before lol x

RayB profile image
RayB in reply tolandslider

I once seen a sign,,, it was just an 8ft by 4ft sheet of plywood attached to a fence. It made no pretence at being anything other than an 8 X 4 and in big red matt paint it said " RELATIVES BY APPOINTMENT "

I of course don't need such a vulgar thing attached to my little fence.

After dad died, I closed the door.

Dad was a cracker,, he was stone deaf,,, his sister called one day and couldn't get an answer. She peered through the window and seeing him sitting reading the paper,, she started flapping her hands and rapping the window to get his attention,,, eventually he looked up and went over to the window pulled the curtain slightly and turned the blind down.

She waited at the door for a while but eventually went away.

Silence has a very powerful voice!

Shadows-walker profile image
Shadows-walker

I have oil of cloves , lavender oil , pain meds , bottle of water , foot heat pads , and gloves and circulation gloves and splints . Colouring book pencils yoga zentangle cards and pencil case iPad and blanket ,chewing gum and fresh fruit salad in the fridge .shadow and Murphy for cuddles 😀

People text me or phone before they call if they do ,so I get no unwanted visitors , but I think a sign on front door might be a good idea .

chris 😀

TheAuthor profile image
TheAuthor

That sounds a wonderful idea my friend and it is not something that I have thought about but now I will give it some thought. Thanks for sharing your idea. I genuinely and sincerely hope that you feel more like your usual self again soon.

All my hopes and dreams for you

Ken

Regnofibro1 profile image
Regnofibro1

Umbrella

Jacket

Candy

Water bottle

Headphones

Small throw blanket

Extra meds enough for 2 days

Baby wipes

Sugar free gum

Extra clothes

Dry food

And we call it a tornado emergency pack

Minx88x profile image
Minx88x in reply toRegnofibro1

Well sometimes fibro feels like a damn tornado sweeps you off your feet and leaves you bruised and disorientated! I need no such sign I have a very antisocial husband that's like a bull dog. He gets the door and nobody gets past him unless he approves lol

nadine111 profile image
nadine111

i have a table that looks like the ones used in hospitals that can be pulled up to the bed (only mine is rather nice looking). i keep my laptop, pens and paper plus snacks and water. i make sure to have enough pillows the prop up my arms so my neck and back are properly aligned. has made a huge difference. i don't allow myself to keep my pain meds though. feel like if i want a pain pill i need to get myself up and get it. probably stupid but for some reason feel it's important. anyway, try the table. it's been a huge help.

maggi999 profile image
maggi999

Love it! I would also add a good session on FA UK to enjoy a good laugh at 'pic of the day' and read the wonderful supportive messages from our fellow fibromites - always cheers me up xx

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