I've been a member here for a little while, but I seldom comment (until recently) and I think this is my first time posting. In addition to fibro, I suffer from sjogren's syndrome and multiple myeloma, a bone/blood cancer, which I'm receiving treatment for. Having to deal with all three presents a lot of challenges because I continually have to remind people that I am also in pain as most people with MM don't have the pain.
I'm just curious to know if there are others here who are dealing with more than one disease. If so, how are you dealing with it and balancing life?
Hi PetulaW, I don't have anything as serious as your cancer, which I hope that you will be healed, soon!! But along with my Fibro, I also have Sleep Apnea, Dystonia, and the mistake of a dumb doctor who caused an abscess on my spinal cord. But, with all of these problems I think dealing with depression has become very serious, and I hope that I can get it under control. But, I get some relief from my Fibro by using a heating pad, called a Thermaphore. If it wasn't for it, I'm not sure that I could deal with these things. If you have any questions, please don't hesitate to ask. I hope that you will overcome the cancer, I know that must compound your pain.
Hi I just read your post and it says you suffer from dystonia. The letter I received after my diagnosis says that I suffer from dystonia as well as fybro and a few other things but when I asked the doctor what does that mean he didn't really answer me. I hope you don't mind me asking what is it? What have I got?
this will get you onto the nhs website that explains Dystonia.
I hope that you find this helpful .
You're right about that. Even those who also have multiple myeloma are confused when I say I'm in pain. I forget that I'm "unusual."
I know what you mean about the depression. I remember what it was like not to be on meds. Some also help with the pain. I was so tense from being anxious and depressed. Now it's "just" regular, so to speak, days.
Thanks for commenting and being here!