Fibro fog.

[bonny12346]

You are probably all sick to death about people asking how your foggy days, week, months affect you and I know two people are the same.

I don’t know if it’s because I am 55 and probably going through the menopause but no one has told me anything .

I feel like I am loosing my mind. I carefully try and

go through what I want to say and it still comes out wrong . I can know how to do something for a minute and then is has gone. So frustrating.

Also because I have tics or spasms, I can’t be trusted with anything sharp.

I am stressed about everything all the time. Both kids have left , my daughter got married and then graduated, neither of which I went to but I think she understood.

A new symptom as well, feel really nauseous and feeling the room spinning. If anyone can give advice or crafts that don’t cause much pain. Ha . Did I just write that.

Big one I think, my mind is starting to except my body has changed and I am not in my 30’s anymore or is my mind playing tricks on me because I have had a bit of libido come back after 14 years and I am trying to stick it back in it’s box because I am terrified of what or how

to do with it. I’m agoraphobic, my friends don’t do illness and and I have know idea about my sexuality.

If anyone can help with any of the above I would be much obliged .

Sorry for rambling on

Thank you for reading

[Hidden]

First thing I thought of is have you had any blood tests recently ? Some of your symptoms could possibly be low iron, vitamin D or B12. I know we all get similar symptoms with fibro but vitamin deficiencies are easily treated so if any are a bit on the low side, symptoms will be worse.

I found the onset of the menopause affected my balance and memory, especially names, so that could also have something to do with it. Might be worth talking to your doctor but I’m not sure what current treatment is ( I was 10 years younger than you, was given HRT but didn’t get on with it)

[bonny12346 in reply to Hidden]

Thank you for replying 06hollyberry.

Funnily enough I have had to have some blood tests redone because the GP wasn’t

happy with something. It must be a secret because he didn’t tell me which blood test and what they thought was wrong with it.

My housing officer called him out again this week because I was in my trying to find a way of killing myself mode.So had to have the lecture- what will your do do without you? It used to be the children but they have their own lives and are doing well which was and is except for putting happy and healthy in there.

Such is life!

[Hidden in reply to bonny12346]

Sorry you’re experiencing so many difficulties.

You are entitled to copies of your blood test results and you can always post them on here for help with interpreting them. Block out any personal info such as names and you’ll get some good knowledge on here.

[heartbreaker]

Hiya I can relate to ur post 100%, when I first get up I'm like a zombie & have 2 wake up properly before I feel human. I have inner shakes & uncontrolable muscle spasms, wot do u call tics? Memory is awful, I say random things & wen I speak it comes out wrong or I forget wot I was saying! I have dropped lots of cups of tea wen my hand just lets go! It's awful isn't it?

[bonny12346 in reply to heartbreaker]

Hi heartbreaker

Great username. Why can’t I ever think of great evocative usernames like that. It takes me about 3 hours or so for me to have my mind and body to connect and and woe betide the next person that tells me I sound drunk because I am slurring my words or I look really well when I... we all get that .

Thank you for replying

[Hidden]

Hi

I'm the same. I start talking and my son will say start from the beginning because I'm going through it in my head and start to talk half way through!! Please take care. Love and hugs Lynne xxxx

[bonny12346 in reply to Hidden]

Hi Oldham12

Funnily enough (that must be my word of the day. Lol )

Oh do any of you have a jukebox in your head? Every day I wake up with a different song going round and round up there. Today I had the wonderful Guy Garvey with Golden Slumbers mixed with a Maddona song. Just remembered- Hey Mr Dj..... they were the only words I knew

There was an old lady that swallowed a fly tired me out because I had to go to the end every time.

Back to Sons. Mine has absolutely no patience with me and has even left the house because I couldn’t think of the word I wanted OR

(I get this now I have watched it)

Asked who is that again in Game Of Thrones-whooo no judging!

Just saying it how it is.

Thank you

[Bakgri]

I have poor memory of things that happened long ago, its just a black hole when others mention something that happened even a year ago. I manage very much in the here and now. I used to be able to think really clearly in my job, used to think strategically and creatively, now I can only work at 50%. I also now only work part time. I feel sad that I should be at the height of my career, but equally it could we worse, at least I can work

[bonny12346 in reply to Bakgri]

Hi Bakgri

I feel the same , especially when it is something I used to be able to do and now I have to pay for it.

That hurts and so does the Lonliness

[Bakgri in reply to bonny12346]

Hang in there Bonny xx

[Hidden]

Hi

I had to take ill health retirement last year due to all my debilitating conditions, very hard but my boss was and still us brilliant. Please take care. Love and hugs Lynne xxxx

[capnb]

Hiya,

I have had fibro fog for many years, well before being diagnosed .

A few years ago i walked into my sons doctors by the way im registered at another practice and asked the receptionist for my sons prescription,"Whats your sons name" ? Errr not a clue ,nothing came to mind ,next question" Are you married "?"Yes" i replied my wife is registered here,"Whats her name " not a clue the more i tried to think the further away went the answer.

She looked at me and saw there was a problem and said"go outside and perhaps everything will fall into place dont q up again come straight to me "Before i had even got outside everything came flooding back.

The look on the ladies face behind me looked at me like I had antlers growing out of my head,and overheard her saying "Is he on drugs fancy forgetting those names "To which the receptionist replied "please mind your own business and just hope it does not happen to you ,he does not choose to be like that and the panic in his face told me a different story to the one you saw and heard"I just picked up the prescription and left.

It has got a lot worse over the years, IE>>> I can pick up a piece of paper at 1030am with the reminder written on it that i have a docs app at 1100am put the paper down and its gone from my memory completely i have missed so many appointments its getting serious that i need someone to come and get me to say off you go to your appointment once im out i know exactly what and where im going as long as someone does not ask me a question lol.

So bonny chin up there is loads of us out there you are not alone at all