just saying hello

[dawn21dawn21]

hi everyone my names dawn i suffer from fibro underactive thyroid and hypermobility i also have plantar facillitus in my feet i changed my doctors as you had to wait two weeks for an appointment the new doctors are canny but i dont think they understand fibro enough does anyone have the same problem im now stuck at what to do next x

[ailsamary]

hello and welcome, i have everything you mention lol, this is a reat group and ask away am sure someone will eithre have the answer or at least be able to point you in the right direction.

my planter fascitis is abated at the moment - because i cant walk far enough to get it inflammed.

Am not sure what you mean when you say what to do next. I would have a referral to a rheumatologist or pain clinic depending on what your issues are. You will find that we are all different and react differently to different things so there is no one thing that works for all.

hopefully someone will be able to help you a bit more

[dawn21dawn21 in reply to ailsamary]

hi ailsmary , you are right this is a great group couldnt beleive the replies i received i have been to a rheumatologist but never been to a pain clinic will ask my gp about it coul be the help i need thanks x

[hoosa]

hi Dawn a find my Drs don't either and all i know about it is off the Internet and other members on here am having another appointment with my Consultant in October hugs to you xxx

[TheAuthor]

Welcome to the forum and I sincerely hope that you find it useful, informative and loads of fun! You can have a Fibro information pack sent anonymously to your GP via the Fibromyalgia Action UK website. It explains everything a GP needs to know about Fibro. I have pasted you a link below:

fmauk.org/information-packs...

I want to genuinely wish you all the best of luck.

All my hopes and dreams for you

Ken

[clare_hart in reply to TheAuthor]

Hi Ken, guess you were posting as I was typing. Is this packet ever sent to the US? We don't have any such thing here, I don't think. But I will look into it. Thanks, Clare

[TheAuthor in reply to clare_hart]

Hi clare, that is typical .... !

Not that I am aware of? You could email them and ask? I have pasted you the link to that below:

fmauk.org/contactsmenu/head...

All my hopes and dreams for you

Ken

[clare_hart in reply to TheAuthor]

Thanks. I'll check it out.

[dawn21dawn21 in reply to TheAuthor]

ah thanks ken thats lovely could help a lot at least they wont be able to forget about us big thankyou.

[clare_hart]

Hi Dawn, welcome.

I ran into too many doctors who wouldn't address my issues and obviously thought I was either hypochondriac or drug seeking. Grrrr.

I was finally referred to a rheumotolgist to rule out RA, and he said, if the GP wanted a fibro diagnosis, he wasn't the guy to see (it must be different in the UK than here in the US). Then he said that my records already say I have it and he knows the pain management office, and they're reputable. Anyway, he does believe in fibro and gave me an Rx for pain meds.

It's not the easiest thing to find a doctor who really believes in fibromyalgia. But I agree with the above. Get a referral to a specialist and that opinion will carry the weight you are needing.

There are other things that can be done if a person has the strength and mobility yet, like yoga, tai chi, aqua therapy. Just some ideas. Of course, I should be better at taking my own advice.

[dawn21dawn21 in reply to clare_hart]

hi clare cannot work it out how your diagnosis is the other way round to ours lol but when i have been on the internet looking up fibro its always said that the US take more notice and understand it more than the UK i have been for physio but didnt work for me no harm in me trying yoga or tai chi thanks for that clare .x

[MariLiz]

Hi Dawn, welcome to the forum. I have most of what you have except the plantar fasciitis. I do also have low B12, have you ever had your levels tested? It does seem to go together with all the other things. Having the B12 injections has helped with some of the symptoms, unfortunately not all of them. I guess you have seen a rheumatologist, they can help a bit with the Fibro, and maybe hypermobility. I do get to a Yoga class when possible, and find that helps. Massage is good too, but you have to make sure they understand the deep tissue massage can be too painful. Something more gentle seems good. Good luck with everything. MariLiz x

[dawn21dawn21]

hi MarLiz thanks for the welcome i have been tested for B12 but my bloods came back lacking vitamin D which i take daily went twice to see a rhematologist twice been sent for physio dont find it helps but ive never tried yoga could give it a whirl worth a try.Thanks MariLiz take care x

[MariLiz in reply to dawn21dawn21]

It is worth getting a copy of your blood test results for B12. The doctors are quite happy to tell us everything is "within range", but it could be very near the low end of the range. Incidentally, I am also low in VitD and have just begun to take a supplement for that. If you try Yoga, make sure it is the more gentle Hatha Yoga. Some other forms can be a bit extreme. Are your thyroid levels all OK? My endo wanted me to try T3, but the NHS won't allow doctors to prescribe it in this area. So I'm looking at maybe self treating. Best wishes MariLiz

[dawn21dawn21 in reply to MariLiz]

hi MariLiz i am due about november for a blood test to check my thyroid i take 125 levothyroxine every day but to be quite honest i havent a clue about levels or anything about my thyroid doctor has never discused it only to say its just on the border line.

[MariLiz in reply to dawn21dawn21]

You are entitled to ask for a copy of your blood test results, some doctors surgeries charge a small amount for paper and printing costs. It is worth doing so you can keep your own copies. People on here are very good and will help you to understand those results if you post them on here. I was told I was fine by my GP for years, but I was gradually feeling worse and worse. Eventually I paid to see an endocrinologist privately, he could tell that my thyroid was failing. I think we know how we are feeling, and know if something isn't right. We need to become our own experts in whatever is wrong with us. Getting your test results is the first step. Good luck with everything. MariLiz

[dawn21dawn21 in reply to MariLiz]

Hi MariLiz thanks for your help i think in november when i get my test done i will see the doctor and ask him to explain the results and explain exactly what it means because i just take my tablets and thats it i did go up to 150 once and back down its just hard to know wheather the extreme tiredness is my thyroid or fibromyalgia i carnt win lol.Thanks again for your help x.

[MariLiz in reply to dawn21dawn21]

I was raised to never question a doctor, my Mum always treated them with great respect. It's only as I've got older, that I realise they are only human and can make mistakes. Hope you get some answers in November. Good luck. MariLiz

[dawn21dawn21]

ha i bet your mum was right i probably get an ear bashing lol i will try thanks x.