Havent posted for a while but its because my struggle with fibromyalgia has only got worse. Disturbances at home, mother and father on verge of divorcing and the nastiness and fighting that goes with it have done nothing to aid me steady my condition. Both sides want me to side with them against the other and i want to keep out of it.
My gp has been useless. I've had to go via the practice manager to get my rheumatologists recommendations, including med changes and therapies, activated as the gps hadnt reviewed my letters 4 weeks after receiving them. My rheumatologist Dr smithson is very thorough. As it had taken 15 months to get me forwarded to her, she wanted to ensure nothing 'nasty' had happened in the time i was waiting and hiding behind my fibro diagnosis such as cancers, arthritis etc. i had the bone scan with an iv radioactive dye. Took 4 attempts to get the dye in a vein which wasnt a good start. Fortunately only signs i've recently fractured my big toe and previous evidence of hypermobility issues in my hands and chest showed. I'm vit d deficient and a few other levels are out. My gp decided to change all my meds at the same time. So i was changed from citalopram to sertraline, oramorph to zomorph and gabapentin reduced over 3 weeks to change on tuesday this week to progabalin. The zomorph doesnt work at all, whether thats as the gabapentins influence is reducing or because all the stress going on at home is flaring my pain more. I've had migraines lasting a week, unable to look at light, throwing up all day and night. My back pain is agony and my hips feel like i'm constantly in a torture device or something.
I am under physios, psychologists and ot's as well as rheumatology but so far no good has come of it.
Sleep is impossible as i cannot relax from the discomfort and pain around my body. My mind never switches off. Whenever i do doze off, i have horrific nightmares consisting of something i saw or did that day which turns into a horror movie or something. I always awake in cold sweat.
At the moment my family are not supportive except my grandma who tries to take me to my appointments and talk to me when she's around.
I dunno how much longer i can cope feeling like this. I'm constantly exhausted, in agony and having to put a smile on my face or my parents round on me and have a further go, spiking my flare ups even more.