I think this is my first post on the fibroaction site though I have dipped into it once or twice to answer other people's posts.
I'm a 65 year old woman who was diagnosed with fibro 5 years ago. I have also been diagnosed with hypermobility syndrome, osteoarthritis in C3/4 and C5/6/7 of my spine which gives me referred pain in my shoulders, tinnitis, vertigo and mild asthma. My fibro symptoms come and go - some of the time I experience mild pain so have been able to go to weekly circuits class and rambling fortnightly, walking 7 miles. Other times I experience intense muscle cramps which nothing will shift for more than a few seconds, or continual aching or intense pain seemingly for no reason, and my energy levels are variable as they are for many people with fibro. However what is bothering me more than those obvious fibro symptoms is the way my overall health has been fluctuating over the past 9 months.
After long periods of depression I began to feel a lot better in myself. I managed to lose some weight, joined the Ramblers, attended circuits class on recommendation of the local health improvement team, and generally felt well in myself - I looked healthy, my nails and hair were good and I was enjoying my life. I saw my GP in early October last year and said how good I was feeling. The following day I had the annual flu jab and despite the info saying it is impossible to get flu from the jab because it is not live antibodies from that day on my life seems to have fallen apart. The day after having the flu jab I had localised swelling and my arm ached terribly but I knew that was a normal reaction. I went rambling as usual and had no difficulty with the 7 mile walk. However a couple of days later I started feeling unwell with all the signs of flu - temperature, aching all over in a way that I never had before with fibro, feeling dizzy and short of breath, and generally feeling dreadful, I didn't move for several days, just sat in the chair. Gradually the symptoms turned into a more obvious ENT and chest infection and it took weeks for me to feel up to doing much - I even cancelled going to a number of theatre evenings and concerts despite really wanting to go and the tickets having been expensive - I didn't have the energy.
At the end of the 6 weeks the symptoms lifted and I felt well with normal energy levels. The same pattern keeps repeating, I have a few weeks of feeling fine and then flu-like symptoms for anything from 2-6 weeks at a time. During the past 9 months I have been feeling unwell for 13 weeks. It feels crazy that just at a time when I was feeling at my best for a very long time and pacing myself reasonably I feel as though being able to live a happy healthy life is almost over for me. I find it really distressing.