This will be my first post. Hallo to everyone. I have had a very long dobro spell this time. Normally it eases in two weeks but I am now into my ninth and things are not getting any better. It starts in my feet and I can feel it travel up my body I.e. Into the arms, fingers so painful difficulty to open door. Walking very difficult. I am sure I will wa,en up one morning there will be a tea idol lying on my pillow instead of me oh! Or a co-dydromol. I alternate between them to see which one helps more.
This started with me in 1987 after sustaining a spinal injury and after having every possible test done I was diagnosed as having rheumatism of th soft tissue of the spine up through the neck. Such a long time to be pain.
This time I am at the end of my tether and wondered if you can give me any possible help. No use phoning my GP this month my tramodol has been increased from 50mgs to a 200mgs capsule slow releasing twice per day but find I still have to top up with 50mg in between.
I was always told that I had a high pain threshold but even I don't believe that any more.
Thanks for listening some times it's just good to tell someone what a day in the life of Fibromyalgia is like.
Bye.
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Sallymcd
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Hello sallymcd. I am not well up on medication as my pain levels are usually at an acceptable level for me. I do suffer in other ways.
I do know that there are other medications that you could try And that quite a few people have been helped by attending a pain clinic.
Sorry that i cant help more but some one else may be able to.
Thank you Sue for replying. Yes over the years I have been on certain drugs but my body would not accept them. So at the moment it's painkillers and that's it.
You take care too and once again thanks for trying to help. Sally
Yes I learned this fact years ago . In fact it was a newspaper article I read about Fibromyalgia and though of my God that is way I have got. Cut it out took it to one of our Drs and asked is this what I have got and she said yes.
Just to have a name for it made such a difference I didn't think my imagination was running away from me any more.
Sally I was told I had something else RLS so for years I was treated for that wrongly And then I looked up Fibromeaga on line and did the same as you So now they agree iv got Fibromeaga can you believe it x
Welcome Sallymcd,
My goodness you've certainly had a time of it lately my friend. I'm so glad you found us.
Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun! I have pasted you a link below to our mother site, FibroAction which hosts loads of useful Fibro information:
Thank you so much for all your kind words. Yes it is nice to share Fibro with someone. My Dr had not heard of it and had no time for this but since that he has now read up on it and apologised to me. Sally
That is quite something, Sally, for your doctor to study, and then apologize to you, when many Drs. don't even acknowledge FMS! I'd be so pleased with that physician. I am lucky that all my Drs. believe it's a real thing ~ I haven't yet encountered any who think otherwise.
I hope to go to one who I'm told actually SPECIALIZES in FMS, here in Dallas, but it's very hard to get an appt ... obviously. (One of our daughters sees him for her Lyme disease.)
Thank you for your message it does help to hear from others and know that I am not on my own. Let me know how you get on with your Specialist. Best Wishes. Sally
Meds and physical therapy has mine not so out of control. Can't say it's in control though. Fibro fog most days anymore so I will take what I can get. I have a lot of health issues but I try to laugh instead of cry most days. I hope you find something that helps you. Welcome to the group I myself have not been a member long but I love it! 😀💐
Welcome to posting come on and post as often as you need to as sometimes it is just good to vent ones feelings and you have found a really good supportive site with very kind people with vast experience of this condition.
I don;t know what sort of pains you are experiencing but one drug I would not be without which helps the burning, stabbing pain is Pregablin. Not everyone gets on with it but it could certainly be worth a try if you pain is more neurpathic in nature.
I find when I am like that that the one thing that helps in a good long soak in an Epsom Salt bath before bed as somehow it seems to relax the muscles and help with the pain.
Hope you find something that eases it. Soft hugs.x
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Stop the Abolition of Disability Living Allowance for Personal Independence Payments
