dealing with pain and grief

[Ksxo]

hello, I’ve had a rough couple of years and I’ve noticed that the past year my flare ups have been getting longer and longer it is also making me feel very anxious. At the beginning of the year I left my job stopped leaving my house and was doing nothing other than struggling I didn’t even contact the doctors I felt that bad.

Now I’ve found a new job but I haven’t been there too long but I have been having family problems and bereavements and my flare ups have started back up making me take time off work this time I have gone back to the doctors and informed them of all this I was just advised to start exercising and to try therapy. I’m struggling to even go to work so I’m not sure how exercise will help when I’m having a hard enough time doing my day to day activities. The pain and pressure in my body and joints is really getting to me and making me feel fed up does anyone have any suggestions????

I am on naproxen and amytriptaline just started to retake these but I don’t find them that helpful and the amytriptaline gives me really bad headaches as well.

Any advice welcome, thanks x

[Yassytina FMA UK Volunteer]

Morning, sorry to read your going threw a hard time at the moment, I would see your doctor again and say you are trying very hard to excercise but your body is in a lot of pain, he/she may be able to review your current pain killers, you can always ask for a follow up appointment so they keep monitoring how you are doing, as for therapy did they organise anything for you in the form of cbt, doctors can refer you too the right help, sometimes they need alittle nudge. Working must be harder as your trying to seek the right help in coping with fibro in the work place. Hopefully your doctor will take on board what’s going on but if your not satisfied with the help your getting maybe change to a different one at your surgery, I hope things will get better very soon for you xx

[Ksxo in reply to Yassytina]

Thankyou I’ve literally spoken to my doctors like 3 times in a couple of weeks, my dosage of amytriptaline is just getting put up and I have take the naproxen and been recommended to take paracetamol. Just rubbish because I’m missing work because of it and they are kinda on at me now xx

[Cat00]

If the Amitriptyline is giving you headaches you shouldn't be on it, there are other drugs that behave similarly that may not give you that side effect, like Nortriptyline. Have you been on it for long or been given any other options?

[Ksxo in reply to Cat00]

Hey I’ve been on them on and off past couple years I’ve also tried duloxetene and gabapentin but never been given nortriptyline or even heard of it. Was just told to take paracetamol.

[Cat00 in reply to Ksxo]

Personally I don't take anything for fibro, nothing works but the side effects still hurt me. Like you I've been on many things over the years. Hated Gabapentin and Pregablin because they made me put on weight.

I can't see paracetamol helping any of us though! Maybe you could try Nortriptyline, it's an option at least?

[Ksxo in reply to Cat00]

Thanks I’ll speak to the drs and see what they say. It’s so annoying that nothing works cause it’s really effecting my life currently. Just nothing works to chill it out been flaring for about a month on and off and I can’t seem to calm it down.

[Cat00 in reply to Ksxo]

I don't have flares it's just continuous for me. I have flares of my other conditions though.

Hopefully your doctor will consider your situation sympathetically and let you give Noratriptyline a try.

[Ksxo in reply to Cat00]

Hopefully, Thankyou for the advice x

[Sleepyhead_]

Hi there ive noticed my flare ups are getting longer aswell - I understand on the exercise front also it is very difficult to do daily tasks and see most as being my exercise. As for a suggestion can you do a sit down hobby perhaps - I have many that I can do for as little or as long as I wish depending on how bad the pain is on the day - I hope this is helpful 🦋

[Ksxo in reply to Sleepyhead_]

Thanks, I read for a hobby. But I'm just as bad now as I was a couple years ago unfortunately.