Hi I have been put on the waiting list to the Pain clinic group where you learn to accept that with Fibromyalgia there is no cure and pain killers dont do much if anything apart from adding more chemicals to our ailing bodies, there you can talk to people and see what they do about pain ,living, breathing,daily tasks the list is endless then only to be told at the end of the 10 weeks or how long they have you there for that the whole aim of the Pain clinic is that we accept the Pain and realize that we have to learn to live with it then and only then can we start doing what ever we want to do (horse riding) etc we know we will be in pain after and during but hey enjoy the horse riding your in pain anyway oh yes and also if we need longer than 1 hour to recover from all the pain then do less next time untill we learn how much we can do as we should recover within an hour. Correct me if i am wrong but i am sure i said i have fibromyalgia and always having pain that burns rips tears through your body like lighting bolts out of the blue, knees that wont let you walk very far and should you fall down wont let you get back up, achlies heels swelling,Pain under the buttocks so it is painful sitting or standing. i could go on and on But what i will end on What a waste of the NHS money having to go to this only to tell me that i have to accept the pain.. Pain killers dont work well i know that tried just about everything in the chemist, and should recover within an hour its a joke we dont recover and yes i think we accept already that we have to live with it cant very well turn around and say hang on a minute take this fibro back i will have something different please I just feel annoyed at these patronising doctors who dont know what it is like as they dont have it.
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