Fibromyalgia Action UK
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Dla higher mobility at last

I have not been on here for sometime had a lot going on with illness and family problems. But I am back and I have some great news, after fighting for 3 years, i have finally been granted Higher mobility and middle care of dla indefinitely and i am over the moon. A long hard slog of letter writing consultants reports, but finally got there in the end . I just want to say please do not give up there is light at the end of the tunnel.

6 Replies

Hi Michphil,

Bravo, bravo, bravo !

I'm so thrilled and delighted at your wonderful news !

thanks for sharing - and also encouraging all of us to 'persist' and keep going.

Warmest wishes

Rock Rose :-)


Dear Michphil,

It is good to hear you have been awarded what you deserve as living with Fibro can be very debilitating.

However, I feel awful but feel I must tell you that all DLA even if it's an indefinite award you will be asked to complete a PIP form to change over at some stage. I do think it is very unfair that the DWP is not informing people of this as the letter with indefinite award is misleading.

This post explains more from the Citizen Advice Bureau information;

The many organisations who give advice on benefits are sending out information about Postcodes who are being sent PIP forms as they roll it out over the country.

It might be worth keeping an eye on sites like Benefits & Work , Turn2us etc for when it will be introduced into your area.

I am sorry if this causes any distress , of course this is not my intention. They say it is better to be forewarned - I would keep a folder with all evidence and keep adding to it until the PIP form arrives then it will all be at hand.

Also if you haven't done so already, please email us for the PIP guides we can supply you and we would be happy to send them out to you. Email us using :

Best Wishes

Emma :)

FibroAction Administrator

1 like

Hi, Emma,

Thanks for you advice yes I knew I would have to fill in the pip forms but the feeling of getting it and making the dwp understand how it effects our lives, was for me a great feeling. Infact when my letter came I had to read it 3 times to make sure I was reading it properly. I will email you for the pip guidelines as they will be helpful .

Thank you once again for your advice

Kind regards


1 like

Thank You for your reply, I must say I am relieved you knew :)

It should be made clear to people tho' as I am afraid I think many will get a shock when the PIP letter arrives through the door. In my own personal opinion, I think that is unfair to not be straight with people and them to receive a shock like that!

All the best

Emma :)


Sorry to say this but I am bloody angry at why people should have to celebrate getting what is already due to them without having to fight tooth and nail for it and be put through periods of turmoil, hardship,the emotional wringer and all the other obstacles this bloody useless government makes those who have disabilities go through.

I know it is the only outlet if you receive what support you need to help you live but the procedure should be examined and made a lot more rapid from start to resolution


That is wonderful news! Congratulations.


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