this my first visit to this site,so ... - Fibromyalgia Acti...

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this my first visit to this site,so a smiley hallo to you all

susanna555 profile image
20 Replies

Good evening,this is my first post on this site so a smiley hello to all x

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susanna555 profile image
susanna555
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20 Replies
Mrs_allen profile image
Mrs_allen

My first time too xxx

Mdaisy profile image
Mdaisy

Hello both of you, Susanna555 & Helz0906

Welcome to the FibroAction Community!

We have a friendly community here & try to share our experiences about living with Fibro to help each other. There's regular polls which creates discussion, lighthearted posts to join in with like Foggy's pic of the day, Zeb73 (Admin) Spot the ball & Fibro Education posts, Gins (Admin) Coffee mornings early doors & lots more plus loads of other lovely members to chat to!

Grab a cuppa & you can settled! :)

Look forward to chatting around the community

Best Wishes

Emma :)

FibroAction Administrator

hamble99b profile image
hamble99b

welcome Susanna and Helz :)

regards,

hamble.

Fibrofoggiest profile image
Fibrofoggiest

How nice to meet two new members 😃 Welcome to our informative, supportive and safe but fun forum, the best one by far that I know of, much look forward to seeing you around 😃😃

Foggy x

TheAuthor profile image
TheAuthor

Hi Susanna555 & Helz0906

Welcome to the forum and I sincerely hope that both of you find it useful, informative and loads of fun! I have pasted you both a link below to our mother site, FibroAction which hosts loads of useful Fibro information:

FibroAction Website:

fibroaction.org

I want to genuinely and sincerely wish you both all the best of luck.

All my hopes and dreams for you

Ken

Butter_cup profile image
Butter_cup

Hi everyone... I'm new here too, been reading lots of posts and can relate to many. Still waiting to see if my GP will refer me to a rheumatologist as recommended by the physio (not holding my breath on that one) he's suggesting I have fibromyalgia as widespread pain muscle spasms and many more problems. I had a double heart bypass in 2010, leaking heart valve, pulmonary hypertension, hypertension, plantar fasciitis in both feet ( so painful to walk) had that nearly 5 years nothing really seems to be helping... Collar bone pains... Knees are crunching and hurting (waiting for X-ray) painful right wrist, irritable bowel with diverticular disease... Oh dear the list goes on lol only on meds for heart and hypertension, just in process of sorting out different statins as I'm off them for now (GP not happy) as causing problems. I am so sensitive to meds I'm actually dreading taking anything for fibro... Just relying on paracetamol an ibuprofen for now which rarely touch anything... Sigh!!! Sorry for waffling on this was supposed to be just a short hello really..

Best wishes to all

Butter_cup x

in reply toButter_cup

Hi Buttercup,

it sounds like you have a lot of similar issues to me. Most of those particular issues seem to stem from the Ehlers Danlos Syndrome (hypermobility type) that I've been diagnosed with. There are different types of EDS, and if there is heart involvement it would be worth looking into the vascular type. Look up ehlers-danlos.org/what-is-e... to see the different types and see if you think it might be pertinent to you.

Best of luck to you.

Butter_cup profile image
Butter_cup in reply to

Hi ukwahine,

Thanks for the link i'll take a look not sure ive even heard of it but then again my memory is useless lately. Over last year ive also developed Osgood shlatter disease as well as other knee pain, even Achilles tendon pain.

once again Thank you, nice meeting you

Best wishes to you too.

Welcome Susanna and Helz,

You have found a fantastic forum to become a part of, in my opinion anyway :)

Hope to see you around, joining in on the fun a madness :)

rosewine profile image
rosewine

Welcome Butter-cup, Helz and Susanna.

The others have given you all the links but just to say this is a lovely supportive site with masses of good information and we try to have a bit of light hearted fun along the way as well.

Look forward to reading your posts.x

Butter_cup profile image
Butter_cup in reply torosewine

Hi rosewine,

Thank you for the welcome :)

Best wishes Butter_cup

pops31960 profile image
pops31960

Hi .. Its my first time too ... Its sort of nice knowing I'm not on my own as fibro makes me feel very lonely and isolated ... Xxx

Butter_cup profile image
Butter_cup in reply topops31960

Hello Pops31960

nice meeting you, I know that feeling oh so well and when people ask how are you I always seem to say "fine thank you" knowing no one really understands what im feeling.

Best wishes

Butter_cup :)

pops31960 profile image
pops31960 in reply toButter_cup

Aww and nice meeting you butter_ cup yes that's very true I do usually say " I'm fine " lol .... Unless people experience fibro they can't begin to understand what its like ... Best wishes to you aswel xxx

CushMonkey profile image
CushMonkey

Hello 👋

fenbadger profile image
fenbadger

Hi Suzanna, Helz and pops.

Welcome to the house of fun, let the fun begin.

you're far from being alone so drop in please, and enjoy some virtual distraction and support. I see Ken's already pointed you in the starting direction. :)

Yorky64 profile image
Yorky64

Hello Susanna, Helz and pops.

Welcome 😀😀😀. This is one of the best places to come to when your feeling down. There's always someone here who can empathise with you because they know how it feels.

Wishing better days.

Yorky64

magnetta profile image
magnetta

Hello! Welcome to our community :0 x

Hello! :)

nedd profile image
nedd

Welcome see you around.

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