My first time on this site. - Fibromyalgia Acti...

Fibromyalgia Action UK

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My first time on this site.

badbid profile image
16 Replies

Just saying hi as I have been a fibromyalgia sufferer for 25 years and wanted to hear from others in the same boat. I also have back trouble and latent rheumatoid arthritis. I am 65 years old, but normally active and look after grandchildren four times a week. However, I am becoming more disabled and find walking very painful and exhausting. Getting up hills or up stairs is very difficult. I am on prescription painkillers which help a little, but would love to find a sleeping pill so I could get some quality sleep. Nothing prescribed seems to agree with me.

16 Replies
Regnofibro1 profile image

Welcome to the site!! Have you visited our mother site? There is all kinds of information there!! We try to stay up beat but feel free to rant if you need to! I hope you find the answers you seek!!

fenbadger profile image

Likewise. Welcome.

I find sleep elusive but get a half decent night from time to time. It's not a panacea but have you tried things like Tai Chi and Progressive muscle relaxation? Hot milky drink - there's no medical evidence, it just seems to work, banana in the evening, they say it's the potassium . . lavender pillow. Sometimes even With all of this it still doesn't work but may help sometimes - which is better than nothing. Hope you find what you need.

in reply to fenbadger

You missed out the cinnamon in the drink and as far as i know there is a certain evidence for it, The lactose in the milk changes when warmed up and cinnamon has been used for centuries to aid sleep.

Well it works for me... most of the time. :D

welcome, i love your picture.

Have you ever tried Amitrityline ?

Its an antidepressant that helps with pain and because one of its side affects is to make you drowsy it also helps with sleep.

Niteol is another that used to work for me but havent needed for a while. Id check with your doctor before trying it, The ingredients include Valerian and hop,

Looking forward to getting to know you.

Sue :)

fenbadger profile image
fenbadger in reply to

Amytrip's great. Even in small doses. When I first started it I was off work foe a week I was so spaced out. I dread to think what normal doses would do :O

Any one ever tried a tap on the bonce with a mallet?

in reply to fenbadger

It might work, are you volunteering to be the first to try it out, :P

I have a choice of mallets to chose from. :D

fenbadger profile image
fenbadger in reply to

Just remember you don't need a tent peg between the mallet and my head :O

in reply to fenbadger

Rock pegs are good, hardened steel big nails is more or less what they are.

I will never get working in a lab out of my system. I just wondered what tensile strength they are.

Did think of asking son to take them to work on monday to find out.

But what the heck would i do with the info once i knew. ?

fenbadger profile image
fenbadger in reply to

Send me to sleep without cracking my skull?

in reply to fenbadger

I know one thing, they are big enough and hard enough to make one heck of a bang when they snap.

Nite Paul, sleep tight .

Nite all see you tomorrow.

Hugs Sue :)

fenbadger profile image
fenbadger in reply to

Like my braces? :P

badbid profile image
badbid in reply to

Hi, I have tried Amitiptyline but it spaced me out completely. I stayed on it for 3 weeks, but couldn't even make a cup of tea!!! Couldn't live like that. I am a bright and optimistic person, so like to be alert and with it. I plod on all day through the pain, but am ready for bed by 9 pm.

rosewine profile image

Just to say welcome to the site. Lovely happy picture I am guessing that was on one of your good days. That is the trouble with so many sleeping pills the next day they make you feel like a zombie and you wonder whether it was worth a few hours sleep. Of all the prescription ones I found Zopiclone at the lowest dose enables me a few hours sleep without too bad side effects but I get to take it only once a week when I am desperate as I know these things if taken on a regular basis can losentheie effectiveness.

Quite a few people have found help with herbal remedies but unfortunately they have either made me feel nauseous or have had no effect whatsoever. Other have had some success with some of the antihistamines. I do hope you find something which is worthwhile taking and if you do please post as I and I am sure others would be very interested.x

badbid profile image
badbid in reply to rosewine

Hi, I have tried Zoplicone but they space me out for about a day and a half. I have tried cutting the tablet in half but I still feel a little worse for wear the next day, I don't find it really worth it.

Yes the photo was taken on my 40th wedding anniversary three years ago. It was the only picture I could find easily. It was a wonderful family day. The pain has got worse since then, but I keep smiling .....

Shazzzy profile image

Welcome badbid, lovely picture. My doctor has given me amitriptyline to aid sleep, it is nota sleeping tablet but extremely low dose antidepressant which is also used for pain and sleeplessness. It made me very sleepy during day as well, so doctor changed it too nortriptyline which is similar but doesnt make me so dozey during day. Hope you find a solution soon.

TheAuthor profile image

I sincerely hope that you are feeling as well as you possibly can be today? Welcome to the forum and it is wonderful to make your acquaintance. I sincerely hope that you find the forum useful, informative and loads of fun!

I have pasted you a link to our mother site, Fibromyalgia Action UK which hosts loads of useful Fibro information:

Fibromyalgia Action UK

I am so genuinely sorry to read that you also have Fibro and I want to sincerely wish you all the best of luck.

All my hopes and dreams for you


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