Sending you a smiley wave today - Fibromyalgia Acti...

Fibromyalgia Action UK

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Sending you a smiley wave today

Wavelength profile image
16 Replies

Hi everyone, I'm a little anxious today as on waking I notice that my whole body seems to be in a tremble and a bit of a rapid heart beat, once I've moved it seems subside but can kick off again if I've been sat for awhile, does anyone else have something like this? I'm relatively new to having fibro diagnosed and it's obviously a lot more than muscle aches & pains as my GP described it. Everyday I'm noticing something else to contend with, it's a bit like Forrest Gump, life's like a box of chocolates, you just never know what you're gonna get! Only I can't eat the chocolates.

Have a good day everyone

Wavelength

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Wavelength profile image
Wavelength
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16 Replies

Hi there

I'm afraid I do get this a lot. I also get shaky arms and hands if I've over done it.

I love swimming and used to go a couple of times a week, but the physical shaking got so bad and hurt too, I had to stop going. 😔

The internal shaking etc happens every day and some days it goes, it's not as bad as the physical shaking for me. Edited By Admin

I hope this helps, but maybe you should see your dr about it.

Good luck and best wishes.🌸

Sorebones profile image
Sorebones in reply to

Oh dear. How on earth did you damage your nerves? That must have been painful 🐸

in reply toSorebones

I really don't know, so many things happen in your life and you just get on with it. Probably did something had a moan and just got on with things. My arms have been hurting for many, many years, just got on with things. Now I'm older I pay more attention, we live and learn. 😊

Wavelength profile image
Wavelength in reply toSorebones

Is that what it is then? damaged nerves? I don't know if I've done anything. Your reply has worried me but thanks for reply anyway.

wavelength

Sorebones profile image
Sorebones in reply toWavelength

No. Fibro isn't damaged nerves. So please don't worry.

No one is sure exactly what causes Fibro. There are several trains of thought but the most common seems to be that the nerves 'misfire' sending incorrect pain signals to the brain. The experts are working on it as once the cause is found they can find something to help us.

The best thing you can do is find out as much as you can about Fibro. There are many websites one of which is the mother site of this forum FMUK. I'm sure someone can send you a link as my technical skills leave a lot to be desired. Most of us read up as much as we can.

I hope that has given you some information so that you don't worry. Stress can make the symptoms worse lol. 🐸

Wavelength profile image
Wavelength in reply toSorebones

Thanks for your reply. Yes, research & even more research, thank goodness for the internet. I'm relieved to say my symptoms aren't caused by damage nerves as you suggested and is relatively common with fibro. It makes sense to think twice about how we post messages to "newbies" or we could be guilty of raising unnecessary stress levels!

Wavelength

Crusee profile image
Crusee in reply toSorebones

Just seen on another thread its your birthday.

Hope you have had a great day and spoilt rotten.

Happy birthday.

Crusee

XX

Sorebones profile image
Sorebones in reply toCrusee

Thank you. As to the day, well, let's just say it was like any other lol. I think that once we get to 40 birthdays should be forgotten about 🐸

Crusee profile image
Crusee in reply toSorebones

Couldn't agree more.- I am with you on that one.

Crusee

XX

Wavelength profile image
Wavelength in reply to

Sometimes it helps to know that others have something similar, so appreciate your reply. I'm doing quite a bit of research about this and it seems to be just part & parcel of the whole syndrome and not necessarily anything to worry about as all tests I've had reveal nothing that can be detected. Gosh, it's so complicated! Enjoy your day

Wavelength

in reply toWavelength

Hi

I agree it can be helpful to know how others got on and it is very necessary to do research. Ultimately though it's a bit of trail an error.

Good luck and best wishes. 🌺

Wavelength profile image
Wavelength in reply to

I'm just wondering how do you add all the little icons to messages? can you help me find them

Wavelength

in reply toWavelength

Are you on an iPad?

If so, you press the smiley face.

👍😊🌺

Wavelength profile image
Wavelength in reply to

Ah! no I'm on my lap top, thanks for your reply anyway.

Wavelength

in reply toWavelength

Ahh,,sorry I don't know then 👍🌸

TheAuthor profile image
TheAuthor

Hi Wavelength

I am so genuinely sorry to read that you are experiencing this issue, and I sincerely hope that you can find the answers that you are looking for. There could be so many different reasons that it would probable prove beneficial to discuss it with your GP.

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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