Hi everyone hope your all well.
I'm starting to fall apart!!
As you may already no I have Chronic Polycystic Kidney Disease, and for the past 3 coming up 4 weeks I have been in agony with the pains in both kidneys. Monday gone I went to my doctors for a emergency appointment (as the surgery was closed on the Tuesday all day for a training day and there was no way I would be able to wait that long anymore). So I went to my appointment in my chair as standing is agony. As I said in my previous post my doc questioned to why I have a wheelchair, who suggested I get one and where I got it from. As I andwered firmly I have it because my balance is bad, it comes in handy when I'm in a lot of pain and the Occupational Therapist at Sunderland royal said it was the best thing for me as my legs give way.. That I got it from Wheelchair Services at South Tyneside District Hospital. He didn't look impressed but he is a piglet anyway (putting it politely as I don't want to offend anyone).
So I explained to him why I was in because I am/was in AGONY with my lower back and kidney pain. He then examined me, causing even more pain he stretches my leg out I say ouch please stop and he continues. As I then had tears in my eyes after he then caused me even more pain than I am now alread in.
So I sat back down in my chair and I explained how much pain I am in to the point I'm in tears. He turns round and says okay your in a lot of pain but I'm not changing your medication anymore and I'm defiantly not putting you back on your 12mg fentanyl patch! (Which he took me off, I'm fuming about as my kidney specialist put me on it to help control the pain), now he had taken me off it I can't sleep, stand, walk or even sit as I'm in so much pain and yet he expects me just to get on with life!!
So all of last week I am bed bound, then Friday I had had enough and took more then my normal daily allowance of Gabapentin I'm only supposed to take 3 300mg a day and I woke up on Friday night in tears cause the pain was really getting me down. When I woke up at 6pm ish I took 900mg Gabapentin as the pain was terrible I needed to do something to take the edge off, anything I didn care what it was, I already had my 25mg fentanyl patch on which lasts 3 days. Then I tried to go back to sleep but it wouldn't get comfortable. So I decided to run a nice hot bath and see if that would help, which it did for about 5 minz and then the pain came back. So I quickly washed my hair as I hadn't bathed all week. So I was trying to make myself feel a little better by being a bit more clean
But when I got out the bath my pain shot straight up. The pain was like if I had a kidney infection, so then I took more pain killers anything to help me with this pain as it was really bad. Now I understand why they give you limits to how much you can take (I didn't understand as I have learning/understanding difficulties). I then took 4 more of my 300mg Gabapentin and 2 500mg paracetamol. But soon after taking it I started to feel really unwell and when I was getting clean pjs my balance was even worse then normal. So I rang 111 and spoke to someone and they suggested that I needed to go to hospital.
Anyway so I went to hospital the consultant I saw was the rude one I saw when in last in A&E when I was pregnant last year. As when I saw him I couldn't understand what he was saying to me with me being hard of hearing. He refused for someone to help explain to me what he was saying. So I was very much reluctant to speak to him.
They took some bloods out and yeah I cried and screamed once because it was extremely painful, where he put it. So I got wrong and looks off this one nurse. I just looked at her, they couldn't check my bloods in the end as they clotted but the doc was using big technical words I had no idea what he was talking about. As I kept saying what does that mean.
So eventually they hooked me up to some saline. I explained to the doc that yeah I am depressed but this wasn't done on purpose it was done because I'm in so much pain and I needed to take the edge off the pain. He gave me a blank look.
I cried in pain for about 3+ hours, while the doc then turned around and said aww we will give you some Tramydol I just looked at him stunned and said I'm allergic to it!! > hence the yellow bracelt I had on that he had already looked at. So he gave me some morphine after some serious nagging and crying even more. As I explained to him and pleaded do not send me home like this. The response I got off him shocked the hell out of me...
He said we can't admit you as you don't have a kidney infection... I said I am well aware of that but I am in agony and it is unfair for you to send me home like this!! He said Susan there are patients here that are genuinely ill!!! I was SO SHOCKED and taken back by what he said to me!! So I got extremely upset even more and said I understand what your saying but this pain is not normal for ME something is seriously wrong for me to be in this amount of pain. If you could ring Sunderland royal hospital and speak to them they would be able to advice you on what to do as one if my consultants will be on call!! He point blankly refused and left the room.
He said get some rest with the morphine in your system and we will check on you in a bit!! I said okay.
Next thing I no I have two paramedics knocking on my cubicle door saying I had been discharged and being sent home. Even the nurse coming in to check on my OBS was like she isn't being discharged, then she left the room to check and the doctor had done it on the sly. I said that was really sly of him and the nurse said that was wrong of him. The paramedics were like the doc told you he was discharging you. I was like excuse me but no he did not. He gave me some morphine told me to have a sleep and that he will check on me soon too see how I feel.
One thing I did say to the doc who was treating me was that because I technically had 2,100mg of Gabapentin in my system, what I didn't no until I looked it up on the Internet is it can be very dangerous for people who have renal problems like myself and should be checked. He told me I was wrong but when I was in hospital in July last yeah for ODing on Gabapentin thing checked my kidney function and scanned my kidneys to make sure everything was fine. He refused to do that. So I will mention that to my consultants secretary tomorrow as he had a duty of care to do that and he said it wasn't necessary.
I the got home about 3:30am then about 4:30-5am the pain came back and I was in agony again. But I haven't been back to the hospital.
But I feel even more depressed then ever. So I'm going to ring my consultant tomorrow morning and plead to be seen this week as its wrong to be left in this much pain!!
For this amount of time. So now I'm in the flat in pain and depressed