Ok am I the only one to get jaw ache with fibromygela x
Im in pain : Ok am I the only one to... - Fibromyalgia Acti...
Im in pain
Written by
Cefn48
To view profiles and participate in discussions please or .
61 Replies
•
I have it in my jaw too, whether it's purely fibro or not, I don't know.
I have had jaw pain and jaw locking in the past, i had a mouth guard made by dentist to wear at night, this has practically cured problem for me.
Its horrible dtiving me mad xx
Hi Cefn48, I sometimes get pain from my ear to the centre of my bottom jaw. I have had teeth out but it made no difference. I have fibro, RD and osteo. It could be the fibro or the fact that I sometimes grit my teeth when asleep. Gentle hugs Joolz.x
Cefn48 in reply to
Thats weird as im had a bad ear since ive had fibro too x
Hi I had this a few years ago ,was suggested I had a stone in my salivary gland ,then told by oral surgeon my bite was wrong ,now told it's part of sjorgrens syndrome. but been also suggested fibro. Do you get dry eyes and mouth ? But whatever it is you will find a lot of us seem to have it. Xx
No dry eyes or mouth x but ear been killing lots too xx
It might be worth mentioning to GP. Good luck. X
Hi, no your not the only one. I have not had jaw ache for some time now but went for a few months of it, it would feel as if I had been really clenching my teeth while I was asleep. I mentioned it to my doctor and he just said he didn't think it was anything to do with my fibromyalga (what do doctors know) don't really mean that but sometimes it does feel like doctors either don't care or don't know enough to know what to do to help people with fibromyalga.
I think the same they dont know much lol xx
Hi Cefn48
I am so sorry to read that you are suffering with jaw pain, and I genuinely hope that you can find the answers that you are seeking to this issue. I have experienced jaw pain on occasion, and it is pretty unpleasant so you have my deepest sympathies.
All my hopes and dreams for you
Ken x
Your definitely not alone
I've had to see the specialist for the jaw pain and muscle tightness in jaw and face
I had xray and it showed RA in my jaw joints and it do seem to come and go like a flare up.
I've been told its very common to have this with Fibromyalgia. Actually this dental specialist was the first person who diagnosede with fibro and RA.
Really the xrays showed the arthritis in my jawv area and up into the ear area and then the brain freeze pain that goesvwith it.
Hope you feel the best you can.
Take care of you.
Sweetdreams1234.
Barb.
Well I hope it gos soon its driving me mad lol xx
Well, my jaw pain seems to have three sources & oddly enough I can actually tell which is bothering me at any given time...lucky me. Or should I say lucky all of us..small smile. TMJ is a known symptom of fibromyalgia & I have that. I have damaged discs in my neck that cause jaw pain. And, I clench my teeth unknowingly when I have severe pain, which sets off the jaw pain too. On the bright side...when it is killing me I eat less and lose a few pounds. I pray your symptoms improve & remember you are never alone here. God Bless!
Sounds like you're in more pain that me love u xxx
Speak to your dentist or ask to be referred to the Dental Hospital. Worst nightmare feeling like toothache and earache and not being able to open your mouth wide enough. Dr prescribed me some anti inflammatory tabs which are a big help. Good luck and take care xx
I've had this b4 and when ate food it was worse and my jaw felt like it was going to lock
Hi I have jaw ache especially when I am chewing a long time I have to stop for a while.
Becky
es I and many others on this site have the same. Mine will start off and go on for weeks and then as mysteriously as it comes it goes. I know that I grind my teeth at night and I can feel myself clenching my jaws together when I am in pain so I think that all adds to itx
Me too..I get jaw pain, stiffness and click jaw.
My dentist referred me to a consultant who tested and xrays also. Result... absolutely fine!
This was a little before my major CFS/ME and FM symptoms and diagnosis.
X
Its not a nice feeling is it xx
It's not nice, it's all horrible.
There is some comfort in sharing stuff, if you know what I mean x
Yes lol xjust never thought I wd be un pain at age 45 but cant moan still here to tell the tale as they say xxx
I try and think like that too. Things could be worse I guess. My problems stated three years ago at 47. Life changing !! X
It is that I used to love to dance and now I cant for long as it kills lol xx but just gotta get on with it xxx thats the think were yough and I feel old because of it lol xx
Being restricted takes so much adjusting to. My mobility is very poor, FM pain kicked in sometime after.
Just to be able to go for a good walk would be nice. Kind of feel like half a person (half of what I used to be).
Us peeps have no choice but to adjust our lives and accept, but doesn't make it any easier.
Definitely made me appreciate things more though.
X
That is true its weird as like today I wd clean my house from top to bottom x but I cant no more done haif then spent rest nite in bloody pain lol xx but I agree with u we just learn to adjust xxx
My hoover may as well be an angry animal.... as in, no friend of mine anymore lol. My days consist of not able to do much at all or 15 minutes doing something (light, restricted) then resting for an hour plus. Told that's the CFS/ME side then on top is the FM pain.
I'm a bit confused as many say their FM effects their mobility, my Dr and other sites say FM is pain. I'm kind of past worrying about the names of conditions as it doesn't change anything.
X
Its pain for me I fined it hard to use my hands with it but only on bad days xx how did u get ill first ? If u dont mine me asking x as im not sure how we get firbro in the first place xxx
I remember suddenly feeling 'not right' (sounds mad), then I had a month of extreme pressure and tingling around my skull (not a headache), lots of other symptoms, then had sudden complete loss of use of body (scary). Mobility came back slowly, hospitalised, felt very unwell and weak. It has gone on from there for over three years. Pain side started bout a year ago.
How about you?
I'm off to bed now but will reply/chat tomorrow if you'd like to x
Started about 4 months ago feeling realy tired then aching like flu all over got told few weeks ago its fibromygela xx must be hard on u xx yes chat tomorrow same here of to bed nite sweet dreams xxx
Hi,
Sorry to hear (read your posting) to hear you having a rough time.
So 4 months since all began. Has your gp offered you any medication to try? He really should if hasn't. Can't say my meds have done much, but from this site seems to for some.
From my experience I can honestly say that acceptance of my conditions, and compulsory lifestyle changes was bit of a turning point (don't mean I gave in). Of course it doesn't make it go away
Thats so right x the pain last nite was unreal up most nite pacing about xxxim a tuff cookie xx
Hope its calmed a bit. So horrid.
If no meds, don't just put up with it, get something to try and help.
X
Going to phone docs tomorrow think I need somthing cant move my hands much today xxx
That's awful, very restricting. Make sure Dr helps, let me know how it goes.
X
Will do im going try get early nite then phone docs before work xxx
Hi, how did you get on at Dr's. Any improvement today... hope so x
Hi hows u today x phoned docs appointment thur xx been bit better today xx
Pleased to hear your a bit better. Pants day for me.... not unusual, amazing what can get used to eh (in our own way).
Is there anything that particularly worsens your pain?x
Ive had a bad ear for over 3 months and its hurting lots today im wondering if its the ear that started the fribro off in first place xx other than that im allways in pain somewere xx hows u feeling now any better xx
Maybe your getting reoccurring ear infection?
I had a sinus op due to on going infections. E
Could be that wish it wd go away lol x ive had sinus to its not nice it can make u so miscible xxx
Oh yes, I've had this but I've always felt it's come from my neck .....
Hope it's eased for you. X
God does the pain in neck ever go neck and shoulders too xxx
Yes I feel it stems at the base if my neck and I get defered pain down my arms up to my jaw and then headaches too, how we cope god knows, I'd say I have flare ups. For me I find as well as the pills I use either biofreeze or Foreverliving heat lotion. (Like deep heat) they help. But a good free tip hot water bottle and freezer pack alternate on neck this helps relax the muscles this releases the pressure on the nerves that are sending the pains....... Lastly physio the chin took exercise helps but no instantly.
What works for one may not for another but when were desperate we try.
X x
I know right, at least my sinuses are kept clear.... Best thing ever. Funny tho when I run out of bio freeze and use heat for my back/ neck at work people say arh is your back aching today.... Sadly because the don't seem me they think I'm ok on other days .. If only.
I had jaw problems from the age of 15. After almost replacing my joint, because my jaw locked, my dentist eventually made me a shield to wear in my mouth at night. It made a huge difference. I read somewhere a few years ago that people with jaw problems are more susceptible to Fibro. Hope you get it sorted. xx
Thanks someone told me that too x ive worked out ive had fibrio for many years but never new it xxxxx
Hiya sorry to hear your in pain jaw face neck pain is a symptom of fibromialgia I have suffered with this my self . I do visit the dentist after a while just to check its not a tooth or gum problem as well . Hope your flare up doesn't last to long and you get some relief .
Been a very odd couple days my sin gone to uni I had a down day so I think it set my fibrio of lol xxx its not a nice thing for anyone to have xxxx
Not what you're looking for?
You may also like...
Hello im New to the site
working and always well groomed now imstruggle to get dressedmmost days
Does anyone else have...
appointment at rhematology ,im cured !!!!
and ive also got hypermobility aswell ,
so then only another 20 yrs or so and then im all better...
hello everyone im Maxine 
No sex please im a fibromite!
hi everyone/abody im new to this
HELLO NEW FRIENDS,IM MOUSEY,
