Hi . Can I ask does anyone have problems with sore throat, ears and glands.

[lekcam]

This is my fifth bout of this since christmas and it seems to happen when my fibro pain and fatigue are at their worst. Would really appreciate some advice on this as my doctor just seems to look at me as if I have two heads. Says its a virsus. Maybe it is. But I was just connecting the pain from this and my fibro pain being at its worst today. Thank you. Hope everyone is at their best and being kind to themselves

[TheAuthor]

Hi lekcam

I am so sorry to read that you are suffering in this way, and I genuinely hope that you can find the answers that you so desperately desire and deserve to this issue.

I do not suffer with anything of this nature, but from what you have written it sounds like it might be multiple infections? An infection can reoccur when the source of the original infection is not cleared up properly.

I was wondering if you have a local walk-in centre close to where you live? As they are ideal places to pop into after GP hours and seek treatments for infections, it is what they are there for! I wouldn't mention the Fibro however? Just let them examine and diagnose you on what symptoms are showing at that time?

I want to wish you all the best of luck with this.

Ken

[lekcam in reply to TheAuthor]

Thank very much that is a good idea

[CryBaby]

Hi lekcam. Sorry to hear this. When my Fibro first started those were part of my symptoms. They did all sorts of tests thinking it was a virus / glandular fever. Those symptoms died down once I had been bed-rested for a few weeks. I now get those again as soon as I have a flare up. If you read up a bit more about them - you'll find that "flu-like" symptoms are common for Fibro sufferers especially during a flare, and that includes sore throat, swollen glands, etc. although of course this could be different for different people. My best advice: rest, rest, rest. I appreciate sleeping may not be easy. But rest your brain and emotions too - as it's not only physical stress / exertion that sets off a flare. So do your best to avoid any stress, worry, exertion, etc. in fact I now use my sore throat as one of the indicators to take it easier before a full flare up happens. I hope that helps a bit? You dont have two head, but you have Fibro... Take good care of yourself. xx CryBaby xx

[Angiedeaks in reply to CryBaby]

That's a good point, I don't always listen to my body and then suffer for it. Great advice and very true xx

[lekcam in reply to CryBaby]

Thank you for replying. I am gradually getting used to know when to rest. Its really hard going from being such am active person to saying no im not doing anything today. I now say no im going to bekindto myself today.

[silki]

Yes i used to get regularly, sore throat,ear ache and then very ntender lyphmnodes in armpits,it is always a sign for.

Me that i need to slow down.

[lekcam in reply to silki]

Thank you. I too am gonna have to start to take it as a slow down signal

[silki]

Also i wonder if these symptoms are asociated with chronic fatigue syndrome or ME, more than fibro. I have ben diagnosed withboth, just a thought

[lekcam in reply to silki]

Thank you. I must read more into this

[Shadows-walker]

Hi have you been checked for sjorgrens ,do you get jaw ache sometimes ,and are your eyes ever gritty. Just a thought good luck x

[lekcam in reply to Shadows-walker]

I went to the dentist about 3 months ago after suffering jaw acheon and off for 6 months. My eyes get gritty, wattery, dry and sometimes sensitive to light

[Shadows-walker in reply to lekcam]

Have you mentioned this to your gp ,as i have fibro ,ME , Sjorgrens and ask about a test you should get help for dentel and eye work under disability if you have , watch your tummy to ,get them to check immune system. Take a look at sjorgrens on line its might make sence unproductive cough , make sure you carey water not fizzy drinks ,brush your teeth at least 3 times a day ,try hot compress on your eyes baby shampoe no more tears in as hot as you can bear water boiled from kettle place on eyes for a good 5 mins popping back in water to re heat ,massage eyes gentle and the fleshie bit above cheek bones and wait for the trickling down the back of throat , if it is sjorgren dental hygene is important you could lise your teeth if you dint keep your mouth healthy. Good luck x

[lekcam in reply to Shadows-walker]

Thank you so much for all the info. My dentist seemed to think my jaw and mouth pain was down to tension. Have managed to get an appointment to see my doctor in a couple of weeks so I must discuss everything that happens when my flare ups are really bad and see if he can help me. I have reduced my hours in work and am trying desperately to stay in work as I feel this helps me cope better being out and about but it gets really hard sometimes. Thanks for taking the time to reply

[Shadows-walker in reply to lekcam]

They told me the same thing ,5 years ago ,I think they were wrong ,I think it was the start of my sjorgren ,I was sent to a hospital to see oral surgeon ,keep an eye on it , x

[Mdaisy]

Hello Lekcam,

I get this too, more so when fatigued or really low. My Fibro was apparently triggered by Glandular fever and the symptoms when I am low are like I have Glandular fever again. I wonder if it lays dormant ? The sore throat is the worse sore throat I have ever had.The only thing that helps it is Covonia Throat Spray which luckily tastes nothing like the medicine!

Out of interest do you think your Fibro was triggered by a viral illness?

Thank You for the interesting post

Emma

FibroAction Administrator

[lekcam in reply to Mdaisy]

Thanks for your reply. I started have fibro symptoms after I had a really bad flu. During this time I had really painful joints, head ears throat glands and had to be helped to the toilet cause I couldnt get the energy to get up. It was horrible I remember my mum staying with me for 3 weeks until I got on my feet again. And im sure it was a good 12 weeks before I felf half normal again.

[Cazza2612]

I get throat infections and swollen glands regularly as well. I had really bad tonsilitis in June and really bad fibro flare up at this time as well that I was signed off work and I am still off now. I was in bed for 2 weeks and had a strong course of antibiotics. I have now got rid of the tonsilitis but my fibro has remained really bad and not got any better since then. I now have a lot of sinus, face and ear pain so I guess I probably have an ear infection so should probably try and get some antibiotics for this.

[lekcam in reply to Cazza2612]

Thats really horrible and it makes you feel soooo tired.

[Cazza2612]

I get throat infections and swollen glands regularly as well. I had really bad tonsilitis in June and really bad fibro flare up at this time as well that I was signed off work and I am still off now. I was in bed for 2 weeks and had a strong course of antibiotics. I have now got rid of the tonsilitis but my fibro has remained really bad and not got any better since then. I now have a lot of sinus, face and ear pain so I guess I probably have an ear infection so should probably try and get some antibiotics for this.

[Sesame]

I believe it's a sign that your immune system is fighting something off, or believes it's fighting something anyway. Classic autoimmune, I get it all the time too. Doctors rarely pay attention.

[mitziblue]

Hi sweetheart, It could be you have a vitamin B12 deficiency as it can cause your blood cells to not be able to fight off infection as well as it should. Plus many more symptoms. Google it and see what you think. Hope this helps and you start feeling better!!! xxx Mitzi

[lekcam in reply to mitziblue]

My sister has pernicious anemia and gets regular injections so this would be worth checking out. Many thanks

[jellynpain]

Hi Lekcam,

I am diagnosed with CFS/ME, Fibromyalgia, Pituitary Adenoma , and couple of other things and my list of symptoms go on forever.

They most certainly include, extreme fatigue affecting mobility, pain, chronic lymph node problems, sinus issues, jaw pain, tinitus, stomach and organ issues, twitching and lots more.

It does seem that many deem there to be a symptom crossover with CFS/Me & Fibro, I don't know and to be honest not convinced medical professionals know for certain.

My diagnosis was firstly CFS/ME, extreme pain kicked in a while after, hence later Fibromyalgia diagnosis on top off. Dr's look at them completely individually.

My advice would be discuss with your Dr and if doesn't listen change Dr. Bad part is though some medicines seem to be believed to help Fibro (mmm... may not all agree... maybe???) with CFS/ME there isn't really anything other than alike to Fibro in pacing, self managing, coping etc..

Hope that helps in some way xx

[Looby]

Hi there L :

Ken's advice is good.

Sometimes our GPs look look at us like that because there IS very little they can offer if it looks like a virus. Anti-biotics won't help (and the use of these is discouraged nowadays unless the infection is bacterial, and they tend to kill off the "good" bacteria too). Many Docs are still learning about FM, ME and Lupus-like

conditions.

An excellent (and sympathetic for a change) lady Doc I had a consultation with at a Pain Management Clinic over 2 months ago, suggested that there are so many chemicals we come into contact with now in our homes and outdoors (to name a few: exhaust fumes, spray cans, cleaning products, aspartane in many soft and canned drinks.....) that our bodies' immune systems cannot cope, so we tend to catch any "bug" we happen to come into contact with. The thing is, to avoid as many processed foods and strong chemicals as you can... I have tried this, and it does ease the symptoms. I also avoid crowded or smoky rooms.

We still have the aches and fatigue to deal with...but as CB says, pace yourself and rest WHEN your body says it needs it. Too long asleep is not good (for me anyway) as I need to get outside for natural Vitamin D ! - it is one of the ways of beating the Big D (depression).

Like you - I've had a runny nose, chest infection,ear ache and sore throat on and off since Winter last year and the only relief I have is when we manage to go and have an afternoon by the sea. Living in the Trent Valley doesn't help either!

Flaxseed oil, and Omega 3 oil are both good for boosting the immune system.

Hope this helps....... I do sympathise!

[Looby]

p.s. Ask your Doc/ or Optician to prescribe Systane eye drops (made by Alcon) as these help a lot with the "gritty eyes" syndrome. I have to use them about every 3 hrs, otherwise my eyes would dry up.