Started on meds now!

Hi my rhemo doc has just started me on amitryptaline, has anyone taken this? What can I expect with it? Am on quiet alot for my lupus and kidney failure aswell.. Am getting no sleep and in a lot of pain. I collapsed and was rushed into hosp in that much pain. They say there is light at the end off the tunnel I just don't see the light. Plus the next person that tells me do exercise I wanna scream am so sore and tired I really can't do it :(


8 Replies

  • Your body can only do so muchso listen to it. I tries to do little exercise just to keep my limbs going. Hope this helps much love and healing hugs. Ros xoxox

  • I have just gone back onto amitriptyline .sometimes sleep for longer btu not very restorative sleep.i do think tho it is helped me mentally.not so fibro foggy??im the same -sick of dr s telling me to exercise when I walk my dogs -hto with extreme difficulty_twice a day.they wont accept I have lupus symptoms and put everything down to Fibro when i know it s more than that.

  • Hi Ruth_Iderry

    I am so sorry to read that you are suffering in this way, and I genuinely hope that you can find some resolution and relief to what you are going through? Amitriptyline is quite a common medication for Fibro, as it works as an neural inhibitor, therefore easing pain. I have pasted you a link about this drug below:

    I have also pasted you a link to our mother site, FibroAction's pages on Fibro Treatments:

    I personally have a Amitriptyline derivative called Nortriptyline, as I cannot get on with the sedative effect of Amitriptyline. However, from reading your post the sedative clearly has no effect on you?

    I want to wish you all the best of luck with finding the answers that you so desperately desire and deserve.

    All my hopes and dreams for you

    Ken x

  • Hi Ruth,

    I'm on same meds for pain. The dosage is quite low & to be honest I don't think doing much at all but I am not keen to up the dosage.

    I do know when my pill is due though as the vibrating inner body feeling starts up. Seems to help a little on pain for first few hours but not beyond.

    Doesn't mean won't work well for you hun.

    Wish you luck with them xx

  • I can't take Amytriptilline; It gives me nightmares, so I am on Nortryptilline. It helps, but doesn't leave me flat in the morning.

  • I am on 50mgs amit and really notice the difference with my sleep patterns if I don't take it. Taking it earlier in the evening helps prevent that 'hangover', 'zombie' feeling for me.

  • I take Amitriptyline too, at first I slept like a log, less so now I think I'm getting used to it a few months in but the sleep I do get is better than it was. My brain is now 5 miles in front of me and my body is curled up crying somewhere, left behind! I'm a sensitive soul so can only take 10mg a day.

    Take care and don't let anyone force you into exercise you know you cannot do xx

  • I only take 10mg too, it does help me sleep for a couple of hours. X

You may also like...