Heard of inflammation Membrane

Update from inflammation of my collar bone area saw an ENT consultant today showed him pics of the swelling at its worst he says he junk it is top part of my lungs protruding through the membrane which them cause me ahortness of breathe . Got to have a scan next week . Non the wiser still don't know what it is he just said don't worry not life threatening . Hard not to when u can hardly breathe properly . And advice on what questions to ask next at scan ....

16 Replies

  • Sorry to hear about your pain...I hope you get some relief.

    I've never heard of this before.

    I wish you all the best with your scan next week.please keep me posted.

    Take care of you.

    Make a list of questions so you Don't miss any important info or tips on dealing.


  • Never heard of this I'm so sorry

    For your pain. Please let us

    know how your getting along


  • something else to put to my dr?i have prominent collar bones (same as protruding ribs),never had a diagnosis for either.my gp did say he didn't know what the swelling in my neck/collar bone area was

  • Well after scan I hope t have or answers .. I just know it getting worse and finding hard to catch my breathe somedays watch his space

  • I have shortness of breathe when i do to much,Area around left back gets really painful. Had CT scan will see specialist on monday,

  • mine occurs when I walk uphill,steps or my dog yanks on her lead and laso have back pain on left side -shoulder blade area and kidney areas

  • yep same as me,

  • hope your appointment goes well .please let me know what your specialist says (PM if necessary)then maybe I can put it to my gp

  • well had appointment, been prescribed 3 inhalers, possible COPD/ infection, scan showed something, being put down to smoking, not had one for 3 months, possible camera to see what is going on in lung, top half.

  • Hi kes2008

    I am so sorry to read that you are suffering in this way and I genuinely hope that you can find some resolution and relief to this issue. I have pasted you a link to the patient UK site, as they have a section on this topic:


    I want to wish you all the best of luck with your scan. I have never personally undergone anything like this before so I do not what I can say that will help you in any way, sorry.

    All my hopes and dreams for you

    Ken x

  • I wish I could say something that would help, I experience shortness of breath I am told it is asthma and have two inhalers, this whether does not help. Cant sleep tonight, one of problems with having fibromyalgia and polyarthritis, so whenever I visit my G.P with say chest pains its always one of the above , I am told is the cause of this .I do hope you are able to get some relief and soon.

  • You did! You did something really wonderful by leaving a comment and showing your support for a fellow sufferer, and that is brilliant.

    All my hopes and dreams for you


  • Thanks guys for chatting hard when u have not many people to talk to about his they don't understand .. If I had a broken leg my family would see it and there for help me . But because u can't see anything they assume I am ok ... Well I really know I am not and the worry is getting me down I just want answers I fear the worst

  • Hello Kes2008,

    I wondered as you mention inflammation of the membrane, did your Doctor say it was Synovitis as being the medical terminology? If so, the following may be of interest to you;


    According to a few sources on the internet Synovitis is common in many conditions including some forms of Arthritis, see link below


    I hope this helps

    Emma :)

    FibroAction Administrator

  • +

    I'm sorry you're having so much pain - that in itself makes you feel down and tired.

    I'm sorry but I've not heard of that condition either. You could ask your GP. If I were you I'd try and get an appointment and talk over what the doc at the hospital said and ask what it means. or you could wait until you go back to the hospital and ask them to explain more fully. You should know what you have the matter with you, Suppose you had to go to another hospital if you had an accident or illness, they would want you to tell them all about the treatment. Good luck!!!

  • I have Fibro and I haven't been able to work for several years now. During the past couple of weeks, I've been going into a local school and acting as an exam invigilator for A levels etc very very tired.. It's not difficult apart from walking up and down the rows of desks! The first week I found it hard and had a lot of pain, my feet, lower spine and all sorts, but this week (so far) my back is settling down and I feel much better. I hope it stays like that for the next couple of weeks, then my period of work is ending! Has anyone else found this, or is it just a lucky time this week??

    Thanks Sue x

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