Hi all,I have been attending my local... - Fibromyalgia Acti...

Fibromyalgia Action UK

59,983 members67,145 posts

Hi all,I have been attending my local pain clinic for my Fibro and other things,today the Dr could see how bad I was painwise and tired

andymac profile image
8 Replies

looking,so he wants me to try a new medication for a month to see if it helps so was just wondering if anyone had tried it or heard of it.It is called Tapentadol.would be interested to hear your thoughts before I start taking it.

Andy

Written by
andymac profile image
andymac
To view profiles and participate in discussions please or .
Read more about...
8 Replies
TheAuthor profile image
TheAuthor

Hi andymac

I sincerely hope that you are feeling as well as you possibly can be today? I have never used this medication personally but I have pasted you the link to the drug specs from patient.co.uk, so I hope that you find this useful:

patient.co.uk/medicine/Tape...

I want to wish you all the best of luck and success with this medication.

all my hopes and dreams for you

Ken

andymac profile image
andymac in reply toTheAuthor

Hi Ken,Thankyou for the link and for your kind words.I have suffered with Fibromyalgia for 17 years now and I honestly don't think I have ever felt this bad.The all over pain is bad enough but the tiredness and fatigue is really getting me down.Apart from my Dr and wife I don't really have anyone else to talk to about it and how I am feeling so its great to know I am not alone.

Best Wishes,Andy

TheAuthor profile image
TheAuthor in reply toandymac

Hi andymac

I am so sorry to read that your Fibro has been so bad for you recently. I really hope that things start to improve for you soon.

Take care

Ken

gillirun1 profile image
gillirun1

Hi Andy. I started tapentadol a few months ago. I am taking the slow release version of the drug. I started on 50mg twice a day which is about the minimum dose. I felt it was certainly doing something but that i prob need a higher dose. I did take a while to get used to side effects- headaches and nausea esp. Dr now wants me to up it to 100mg twice a day. I started alternating morning dose between 100 and 50 but when i took 100 every morning i started being violently sick. I am currently trying to fool my system by taking 100 on two mornings and 50 on the third. Hopefully this tail back on the third day just drops the levels back enough. Its a bit frustrating because i do feel some benefit from this drug but feel i am not getting the best from it

davidsam67 profile image
davidsam67

Hi

If you are still looking there is a place you can get palexia sr 50mg (tapentadol) for £25 for 28 prolonged-release tablets

drop me a line at davidsamrichmond@hotmail.co.uk

Scotty2112 profile image
Scotty2112 in reply todavidsam67

Could you contact me abejabri2@gmail.com

andymac profile image
andymac

Hi All,Thanks for you reply's,I got my Tapentadol last week and have to take 50mg twice a day for 3 weeks then I will see my pain Dr again to let him know if I feel any benefit from them.So far i hav'nt,in fact I would say my pain levels have got worse. I know its early days yet but I am really getting to the end of my rope and don't know how much more I can take.Not really noticed any side affects as I suffer with 2 headache conditions anyway and I take stomach tabs as I am on lithium.Will just need to see how things go over the next few weeks.

Scotty2112 profile image
Scotty2112

Hi I suffer with bad pain and was wondering where could I get more oRamorph as doctor has not given me enough I will meet and pay if anyone has any spare will do a good price

Not what you're looking for?

You may also like...

Hi all, hope you are not feeling to bad today. I suddenly developed numbness in my feet and legs, was bad yesterday.

It has gone off today and just tingling, I just wondered if anyone else on here has had a similar...
black-storm profile image

Hi all, I,ve noticed that many of you have other conditions as well as fibro. When I was diagnosed the rheumy said that this was usually the

Case, I,m healthy apart from depression which was well controlled with medication. So, I,m...
wildwoman profile image

What else can I do ? I am 20years old and have been been diagnosed with fibro and been put on amatriptaline and referred to the pain clinic

But every day is worse than the day before I can feel my legs loosing strength each day today is...
Johncarter93 profile image

where can i go for help and support other than my doctor or pain clinic

Hi. I have just came to this group. I suffer with fibromyalgia. I would be grateful for advice as i...
barb70 profile image