I was wondering if anyone has been to... - Fibromyalgia Acti...

Fibromyalgia Action UK

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I was wondering if anyone has been to the pain clinic and had any treatment via drips for their fibromyalgia?

Waterbottle profile image
13 Replies

I went in several weeks ago an had an Infushion which left me worse than before I started that week, I couldn't move my arms and legs very well and have been left with a dragging leg and they say it is nothing to do with this treatment and want me to try again as it could have been a flare up?

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Waterbottle profile image
Waterbottle
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13 Replies
magnetta profile image
magnetta

Hello there,

That sounds horrible :(

Sorry I can't help but I am going to pain clinic on Wednesday so am curious, what is the drop? Do you know?

Lizzie57 profile image
Lizzie57 in reply to magnetta

Drip.

magnetta profile image
magnetta in reply to Lizzie57

Typo! I meant what drugs is it.

Can you write me back and give me more information on that treatment.

Thanks

Waterbottle profile image
Waterbottle in reply to rockefellercarrie

It was offered to me to help with the pain in my joints and they said it often helps people and they know before they leave the hospital if it had worked. For me it left me with terrible side effects and I am still suffering with problems with my leg dragging it feels like lead, x

Waterbottle profile image
Waterbottle

Like what you have at the dentist can't spell lignocaine I think that's right . It is done over 30. Mins in a drop at the pain clinic.

Eggcustard profile image
Eggcustard

Sorry it didn't help for you. I have heard of these, they are lidocaine infusions. Do you mind me asking which hospital it was or could you message me please? It's something I am considering but I think the hospital I was thinking of has stopped them now. Thanks.

TheAuthor profile image
TheAuthor

I am so sorry to read that and I genuinely hope that you are starting to feel better now? I want to sincerely wish you all the best of luck.

All my hopes and dreams for you

Ken

joed profile image
joed

i had a lidocaine infusion about 12 months ago have found out since that its a very powerful thing to have done and what makes things worse it didnt work for me and i have been left worse than ever not to put a dampner on things as i know differant things work for people.

mimiwen profile image
mimiwen

I had lignocaine infusions for years, they helped at first except that I was always in bed with a bad migraine for a few days afterwards, then I would feel a bit better for 2 to 4 weeks. But they don't help me at all any more - according to the hospital they usually stop having any effect after a while.

I've never heard of them making anyone's legs worse so that may be a flare up. It might be worth having one more to see if it helps, but they are a very expensive form of treatment so if they don't help you, it's a waste of money as well as being bad for you.

Wishing you all the best,

Mim

Waterbottle profile image
Waterbottle

Thank you for your reply they want me to try again and see if it was that I guess I am afraid of things going wrong again.

dawnlancaster profile image
dawnlancaster

Hi i went to the pain clinic and alls they said was thers nothing they can do for me as i was on the top dosess of medication now i have to see a norolagist good luck hun x

Inthepark profile image
Inthepark

Yes I have these every 4 months they help me a lot but it doesn’t really help my jaw pain I would deffo recommend you to try it I’ve met some people in the clinic who have told me it almost takes all of their pain away ,of course it obviously affects people differently.

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