how severe and dabilitating does this condition get, i have had Fibro for 7 years and last night the pain was so severe

that i thought of going to A & E

[Hidden]

Hi jacqui1972

Sadly there is no real answer as everybody seems to be affected differently. If you are suffering so badly you must go back to your GP and get your meds adjusted or changed. There are quite a few drugs out there that help our condition so they should be able to sort something out.

I find if I am feeling happy in myself then it doesn't feel so bad. Are you on antidepressants? A lot of us are and they can be a life saver as well as mood lifting.

Piggy hugs xxxxxxxxxx

[Hidden]

Hi Jacqui, there is no guarantee you will get worse, you may even improve. Each case tends to be different and there are no guarantees. All we can do is to try to keep as positive as we can, which is difficult I know when pain levels are rocketing etc. By being positive it doesn't make our pain etc nearly as bad because we react differently to it.

Some people go into a sort of "remission" and they remain symptom free for varying periods of time. Some have even remained in "remission".

You may be in the middle of a Fibro flare-up which tends to cause your pain to escalate and other symptoms to increase too until the flare wanes. This would explain your sudden rise in pain levels etc.

If you are really not managing well at the moment and your pain is escalating, you need to see your GP. Your meds may need reviewing to give you better pain relief, you may have acclimatised to them which sometimes happened and you need them changing or the dose altering. Please be sure to discuss your symptoms and the problems you face with them, so that your GP has a clear picture of your condition today. This will ensure you get the right treatment and relief.

I hope you feel better and more comfy really soon. We are all here for you and we all understand. Take care. Here's a hug for you (((hug))) xx

[Extremelygrumpy]

Hi there as Libby said you can go into a sort of remission with the old flare up, that was me in my 20s to early 30s I count myself lucky, now I am in pain every day, the past week I have been in bed by 8pm with a headache so bad I did actually wonder if it was possible for it to get any worse or if I was having a stroke... Fortunately I went to my gp who diagnosed a sinus infection and a bad flare up of fibro bought on by the stress of OH having op and not being able to lift for 6 weeks... he gave me two meds to get me through and yesterday the headache was better today has gone and the muscle spasms have improved so I am back to normal pain levels... Please see your gp as he may be able to give you something temporary to tide you over this bad patch or modify your meds

Hugs VG x

[hollykarma]

I have had this condition for 11 years and I have never had a remission !!! I have been in constant pain all through that time. I was only diagnosed this year after moving to Nottingham. Before that I was told it was all in my head !!!

[phlebo123]

So sorry to hear of your extreme pain Jacqui -- Before I was diagnosed with FM I was suffering with excruciating abdominal pain (it felt like the most severe "labour pains") -- one night I was in such agony (felt like I was about to actually "give birth") that I phoned the "out-of-hours" doctor -- to my surprise it was my own GP who turned up (in the days when GP's covered this service!!) -- she was so worried about me that she actually sent me straight away into hospital in an ambulance!!! So I don't blame you for wanting to go to A & E. The pain can be so intense at times and it always feels so much worse during the night when you feel so alone. As a result of this I was referred to a Gynaecologist and a Bowel Consultant who did 2 Laporoscopies to look for signs of endometriosis and barium meals etc. Of course these all proved negative. Looking back I presume "this pain" was probably a result of my IBS. I have now learned to manage my pain by "pacing" myself daily and by doing this I can mostly keep the pain at bay. The hardest part of FM is accepting that you can't always do the things that you used to be able to do and "accepting" the "new life" that you have to build for yourself. I know that my FM will not go away but I now know how to deal with it. As the others mentioned see your GP to get stronger pain-killers or get referred to a pain clinic -- remember you are not suffering alone. Take care xx