Does anyone else's family members say chronic pain does not exists?

[emjane4465]

My dads just said this to me. He has taken my oramorph from me. Does anyone else struggle with family understanding ?

[Lruk]

Hi emjane, I am very lucky in that my partner and my children accept when I am sore though they do struggle a bit with the chronic fatigue that is part of fibro.

Would it be possible for your dad to go with you to your next gp and rheumy appointment and hear what they have to say? Sometimes hearing something from a professional gets through better. Or perhaps email him links to some of the posts on here or other web sites that contain the effects of fibro. I really don't know what else to suggest, but I hope you can convince your dad that chronic pain does exist and there are many sufferers out there. Good luck, Linda

[tettridge]

Hi Emjane

I have Chronic pain and find life dificult enough with all my medication but to be bullied like this is unpardonable, immoral and inhuman. I am sorry but this is to much for me to comprehend, does your father know more than the doctor who prescribed the Oramorph, I can assure you that that is not easily prescribed and for him to take it from you is terrible.

Sorry for ranting, I just can't imagine how you must be feeling with your pain and being left with no pain relief you must be feeling really poorly.

What Linda has advised is really good and sensible and I think that you do need to explain how you feel and that the oramorph was prescribed because the doctor thought you needed it, if it was your imagination he would have prescribed a placebo of some kind.

I will end here as I feel so strong that people can get bullied over their health issues in their own home really makes me angry and upset for you.

Take great care and the kindest regards to you

Terry

[TheAuthor]

Hi emjane4465

I am so sorry to read that you are being made the subject of emotional abuse, as this is what it is! Any doctor will tell you that unless it is under strict direction from a medical professional, that you should never stop taking any medication.

I think Linda has made a wonderful suggestion if your father is wiling to attend an appointment with you? If he will not, it may be an idea to ask your GP for some extra Oramorph and not let anyone know that you have it. I could advise that you say something to your GP about what has happened, but there would obviously be consequences in your relationship with your parents.

I want to wish you all the luck in the world wit resolving this situation, and we are always here for you.

All my hopes and dreams for you

Ken x

[Billysmini]

Hi emajane4465 my name is Billie I am new to this fab site not new to fibo I've had it for years but only just diagnosed a few months ago . I was made to feel upset at work one night last week ,as one nurse said to the other nurse that I was working with that all these people with me cfs and fibro should ' all just get on with it and stop moaning it's only yuppie flu ' I said oh please don't say that , that's not fair that's cruel . She was the nurse in charge that night . She is ment to be caring ' not very. She's really upset me big time. I haven't had any time off sick with this illness ever, I live of my meds when I am on shift and never do I moan . She knows I have fibro . Sorry for the rant but I am still very upset and thinking I should say something next time that I am on shift . I hope that you get some relief from your pain very soon , sending you a soft fluffy big HUG ! Billie

[tettridge in reply to Billysmini]

Sorry for the delay in replying but have only just read the post. I really believe that if your colleague actually believes it is just yuppie flu then that person need to go on a course to educate them on chronic pain and ME, CFS Fibro etc. these are all REAL and she needs urgent education.

Sorry, rant over

Take care and kindest of regards

Terry

[hamble99b]

hi emjane, I am so sorry to hear that. please get in touch with your gp for an emergency app't. would it be possible for you to keep it with a friend or neighbour, or failing that at your surgery or pharmacy?

as others have said, it should not just be stopped and is prescribed, I believe, under strict guidelines. I really feel that someone, idealy your gp or practice nurse, should explain this to your father.

please keep in touch,

H.

[Iampain]

How old are you, emjane? If its not too personal? I remember my mother flushing my antidepressants down the loo when I was nineteen, she believed she was doing it for the best of reasons, I'm sure, but she really left me in a mess. Perhaps your dad believes you are in danger of addiction? If you can sit down with him and show him some of the information sheets, educate him on the illness you have been diagnosed with, and tell him that if he loves you he won't withold your medication, maybe that will work? You know him best, but if you believe he won't be reasonable maybe you can stay with friends? I do hope you are feeling OK today.

Jan

[rowantree]

That makes no sense! There's whole departments of the nHS dedicated to chronic pain! Of course it exists. Who would want to pretend to be in pain, to pretend to sleep so badly and not be able to do things with their friends and family! I support you wholeheartedly. Talk to your GP, maybe take your dad with you?

[Piggysqueak]

Hi emjane

I'm fairly new to this site and just seen your post

I do hope your now getting some pain relief and it just shocking what happened to you. My sister in law who lives abroad with my brother she told me one night on the phone " that I disappointed her" and "did not believe I was ill" and few other comments . I was so shocked she told me my whole family felt the same . I was in shock I was absolutely devasted and I cried all night and decided that it did nt want her in my life again ever. However that meant I would lose my brother which I really don't want to happen . My husband will never speak to her again and if it was n't for his and my mums support I don't know what I would have done that night. In fact my other brother and his wife in particular have now made more of an effort with me and they check on me daily. So sometimes something good can come of something so very bad although I'm sure you and I would rather not have had these experiences. I hope by now your dad to has more understanding and realises why you need such a strong pain killer and that even though it's morphine you still feel pain nothing but a cure would make any of us pain free !! Anyway take care I think all the above replies are fantastically supportive and good advice . Would love to know how you getting on but no pressure it's up to you good luck for the future Piggysqueak ( sally) xx