twitching/jerking: I get involuntary... - Fibromyalgia Acti...

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twitching/jerking

Angel2011 profile image
14 Replies

I get involuntary twitching?jerking-can be arms ,legs sometimes by my eye-anyone else get this?

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Angel2011 profile image
Angel2011
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14 Replies
sophie22 profile image
sophie22

I sometimes wake myself up jumping around in bed, don't know what causes it though, its not very nice. Gentle hugs and healing light. X

Julie63 profile image
Julie63

Hi, yes, I get this too, usually when I'm really tired or about to drop odf. I read once what they were called, myolonic or somethng like that. Gentle hupgs, Julie x

Cookie72 profile image
Cookie72

Hi Angie, yes I think the majority of us fibromites have this , not very pleasant, but it seems to be a symptom of fibro, think its cos the nerve endings are affected as well as the muscles, tendons, & ligaments,...for whatever reason it isn't very nice is it....gentle hugs...Dee x

rosewine profile image
rosewine

Yes I have the twitching eye one. It comes and goes of its own accord no rhyme nor reason to it. My husband has that twitching leg thing and we have put it down to one of his medications.x

michelle36 profile image
michelle36 in reply torosewine

the twitching eye is so annoying its only my right eye never my left x

Fibrofoggiest profile image
Fibrofoggiest

Hi Angel, yes I do get this quite often, sometimes it's just my leg, others it's my entire body and like Sophie I've woken my self up with the jerk (in those heady days when I slept more than I do at the moment :o ) . There have been posts here about this subject previously which I will try and find for you :-)

Foggy x

bren876 profile image
bren876

Hi me too..... I've woken up with arms and legs twitching i felt like a puppet on a string!!!!!!!!!!!!!

sunshine hugs to you xxx

michelle36 profile image
michelle36

yes get this daily it is worse in bed when i wake myself up its that bad and the next morning it feels like i have run a marathon x

Lucyhobbit profile image
Lucyhobbit

I get what I call the 'shakes' sometimes because I've been over-doing it, other times I've no idea why, but it really aches afterwards, I'm glad its not just me!

TheAuthor profile image
TheAuthor

Hi Angel2011

I also have this from time to time and I must admit that it is not pleasant. I have pasted you a link below to the NHS Choices website relating to a possible cause for the complaint. I genuinely hope that you find the link useful:

nhs.uk/conditions/Restless-...

As with any new issue or if a continuing problem gets worse it is always best to discuss the issue with your GP.

All my hopes and dreams for you

Ken x

all the time ....and muscle spasms in my back and arms and yes also my eyes twitch ..i do think the eyes are more because of me being tired ? ....but it is getting more frequent.

lcm27 profile image
lcm27

Hi, yep I get Restless legs, plus muscle spasms, hubby reckons its like sleeping with the alien!!!. Prescribed Ropinerol for restless legs and hey it works, plus sends me off to sleep. I get muscle spasms in my chest which make my whole body lift off the bed and wake me up. My eye was so bad the other week I couldn't drive or do anything, but its settled down now. My hands spasm making me drop things, really frustrating, cooking is a real problem with hot pans.

Most of it is part of fibromyalgia, but if its bothersome then sometimes Gabapentin can help with spasms, your gp will advise, but don't just live with it, there are drugs that can help and your gp will know what should suit you. Bear in mind that the drugs are like the pill, what suits one doesn't always suit another, but there is usually something that can help.

Research says exercise helps, not so sure, I still get spasms even with some exercise, but getting stressed does seem to make it much worse. So keep calm and carry on, but pls see your GP for help.

Gentle hugs, Lynn x

solowheelie profile image
solowheelie

yep all of those at times but especially my eyes - i have no answers as to why but it's good to know others do too xxx

marialang1 profile image
marialang1

Hi i am new to all this and this is my first post i have had some real bad spasms they have been so bad i have had to give up doing anything that is hot or cutting up food as i have hurt myself really bad at time it has taken me years to get the dr to tell me what's wrong with me and it took loads of test with so many dr's to find out that i have fibromyalgia and i am still trying to find out. I can't even get any benfits been trying for a long time for someone to help me been so down for years because no one believes me i now have a bad eye which i am going to see the dr about to as i can bearly see out of if after i had a spasm in it a few days ago hope you feel some what better now one thing i find being on here we are not alone which i have been feeling for years sorry for going on all the best

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