Fibromyalgia Action UK
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Hi everyone,

I've probably asked this question before but today really gave me a fright. I was sat at the computer and started twitching which I am used to. That is a sign to me normally that I need to have a lie down. As I was just about to switch the computer off my head jerked right back. I have a sore neck now and it really really frightened me. I know that we do experience twitches but I wondered if anyone else has ever had a jerk like mine that has frightened you?

Any answers would be really appreciated.

Thank you

12 Replies

you might just have pinched a nerve in your neck.

whatever causes it, it can be alarming, my back jumps too.

I hope it feels better soon :)


Hello Hamble,

Thank you so much for replying to me. It was just a bid of a shock, but thank you xxx


Hi babebatista

I sincerely hope that you are feeling well today? I am so sorry to read that this incident alarmed you and I genuinely hope that you have not suffered any further incidents of this nature. Head jerking of this kind can be the result of so many differing things that it is really difficult to say what could have caused the episode?

I would personally keep a diary of all the unusual and infrequent involuntary body spasms and shakes and present this to your GP or Specialist as and when you have made a fair few observations? Your GP or Specialist may be able to ascertain something from your diary?

All my hopes and dreams for you

Ken x


Hello Ken,

Thank you so much for getting back to me. The diary really sounds like a great idea!! I will do that and then see my GP. I didn't just want to assume it was something fibro related which is why I asked. Thank you, gentle hugs xx



Yes, I suffer from twitching and jerking, annoying and can be embarrassing!!

I have cfs/me & FM. When I had a really extreme relapse my jerking was very bad and extreme. Consultant totally ignored (I happened to have a Neurologist appointment that day).

Most days I can visually see muscle twitching in my arms particularly.

Have you ever had a medical opinion to this, please share if so.

Best wishes xx


Hi Jellynpain,

Thank you so much for responding to me. I also have M.E. and also a nerve condition that affects my whole body so maybe it's a nerve problem. Yes I can also see the twitching in my arms and with having the M.E. when I see any twitches I've become used to my body so to me that means I need to have a lie down. It's just sometimes I never known if it's fibro related or M.E. related. I will make an apt to see my doctor as soon as I can.

Gentle hugs for you xxxx


Hi Babebatista,

Thanks for your message. If you get anywhere with your gp would you please let me know the outcome? We sound very alike in symptoms and sharing between fellow sufferers often proves to be most beneficial (both medically and personally in support).

My gp is fab but to be honest most things are now put down to ME and FM, even if not typical. Had alot of scans, bloods but little else.... it gets so confusing!

I am going to post a topic re what tests FM sufferers have or had and what referrals they include id rheumatology etc.

There is so much that is not recognised medically in what we suffer, very frustrating.

Wishing you well,



Hi Jellynpain,

I certainly will let you know, of course that sounds a good idea to me.

Lots of gentle hugs to you xxx


This happens on a daily basis to the point that my hand ended up smacking my then 4 year old son across the face as I was getting him dressed. I cried all day from the shocked look on his face. I still cry when I remember and it's been nearly 8 years! Unfortunately, my gp and neurologist don't think it's important to have this checked, even though it happens to my legs and whole body as well. It came on once whilst sitting in front of my gp. Then again, I have been waiting for 4 months for a date to have MRI scans! Hopefully, your gp may show more interest in your care and well-being. Talk to them and good luck.


Hello Buffthet,

Oh dear, I am sorry that your GP doesn't think it's important for you. Thank you for replying to me. That's one of the things that I am worried about. I am worried that it's going to get worse. I've responded to the other people above and told them that I will make an apt to see my gp soon.

Gentle hugs to you



Probably muscle fasciculation, which happens with myofascial pain syndrome - which more than 70% of people with fibro have. Hope your neck gets better soon hugs x


Hi jjudith,

Thank you so much for your reply. I will see my gp soon and thank you.

Gentle hugs xxx


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