Stabbing and jerking

[Kaleidobrain]

Hi all.. Having lurked for a while I now come seeking advice, wisdom, thoughts on what is bothering me, I have not joined in before because I don't think I can help in anyway, but I hope that won't be held against me, :-). Anyhooo....I have Fibro, CFS, Joint Hypermobility Syndrome (EDS 3 (or whatever they are calling it this week)) TMJD, Lumber Spine damage and Spina Bifida Occulta, Cervical Spondylosys (and my neck bends the opposite to what it should do) Tinnitus and other misc issues... But, I have noticed more and more recently a sharp stabbing pain... like a needle being stabbed into me and simultaneously muscle jerks... so, I'll get a stab in the big toe and my leg will kick two or three times.. or the stab in my lower abdomen (appendix kinda area) and the leg will kick out or this will happen in my fingers and arms. I also get a painless but startling contraction of the chest and abdo muscles that pulls my body to one side..very often i get loads of the stinging stabbing pain which is like an angry wasp is harassing me. Most annoying and these things are becoming more frequent. It's just happened.. the stomach and the leg...nearly flipped my laptrp tray to the floor..just as well I have lightening reactions.!! So, the upshot of this drawn out post is this - Can anyone relate to what I am experiencing? Have you had the same? Do you know what the devil is going on? I am info gathering before I see the GP so she won't think I am bonkers, although after I described my shoulder pain as 'a woodpecker drilling into my bone' I fear it may be too late. Thanks in advance y'all. Julie

[Hollie121]

Hi Julie I can't help you with ur symptoms but wanted to say hi and welcome to a great site I'm sure someone will be along soon to help you

[rosewine]

Just like to say hallo. It looks like you have so many illnesses to contend with that you could certainly do without the latest symptoms. I get the burning, stabbing pains but fortunately without the jerking effect. The drug that has helped me the most with this kind of neuropathic pain has been Pregablin. Hope others can come on and help you more. I know some forum members have found a muscle relaxant has helped these jerks. Take care and look forward to your future posts.x

[Kaleidobrain in reply to rosewine]

Thank you xx

[BlueMermaid3]

Hi there

I have Fibro, CFS, HMS, Osteoarthritis etc.

I recognise a few of your symptoms.

As rosewine has said you do seem to have a lot going on.

Have you seen a Rheumatologist and/or Neurologist?

From my experience I would have thought that seeing a Neurologist may be your best bet.

Have you ever tried a muscle relaxant? Perhaps you could ask your GP about that?

Just bullet point down your symptoms and ask your GP for a referral.

Please keep posting and let us know how you get on.

Good luck.

Lu xx

[Kaleidobrain in reply to BlueMermaid3]

Thank you. I have an appointment with my GP in Oct...I have had to book well in advance to see the one I want. I have made a list I'm glad you suggested it cos I felt a bit daft tbh.. first things first. I am having joint replacement(s) in my left hand next week. x

[rosewine in reply to Kaleidobrain]

Good luck with the operation.x

[Kaleidobrain]

Oooh just thought of another thing.. well cos i noticed it happening.. my head twitches and even sometimes nod - like the 'Churchill dog' only not so obvious.

[rosewine in reply to Kaleidobrain]

I am just wondering whether it could be any of your meds or a combination of your meds. It is just you saying that head movement. When I was out on a tablet some yeafsbwck for my insomnia I had these sort of strange involuntary head movements and my eyes and mouth twitched.x

[Kaleidobrain in reply to rosewine]

Possibly I guess, something to add to my list of questions.. although they have not changed recently. x

[fenbadger]

Welcome to you.

I only get the odd stabbing and jerking. I wonder if yours is related to Restless Leg? I'm almost certain you will get some sort of answer from someone with similar symptoms.

Don't do yourself down, you may well have something to say when you feel it right. There's no pressure. That's partly the point of mutual support. If its a comfort simply to know you don't suffer alone, then the work is done. XX

[Kaleidobrain in reply to fenbadger]

Thank you xx

[Kaleidobrain in reply to fenbadger]

Thank you x

[ryanbone10]

Hi Kaleidobrain , welcome to the forum, It's very nice to meet you!

Have you been checked out for Inner tremors? / essential tremors?

Soft hugs, Elizabeth xx

[Kaleidobrain in reply to ryanbone10]

No, I have only mentioned this to the pain clinic and they didn't really flag anything up. But, because I have noticed it becoming more frequent I thought I should act on it.. better safe than sorry. I will admit I have no idea what inner/essential tremors are so i shall educate myself, thank you. x

[Shazzzy]

Hi Julie I used to suffer from a lot of jerking and spasms this improved hugely after taking vit d prescribed by gp and regularly using Epsom salts in bath. Lack of magnesium can cause the spasms. Good luck

[Hidden]

You have Fibro! Also, is there a season change? You will react to that. I am! I don't think you ever have to apologize for disappearing. We're are your kind & it could happen to any of us at any time...lack of sleep & severe stress are the worst! So try to address this first. Wishing you peace! 🌻

[TheAuthor]

Hi Kaleidobrain

I am so genuinely sorry to read of all of your medical conditions and of the issues that you are enduring at this time, and as the others have said it could be related to many different things from your medications to your medical conditions?

However, a couple of things sprung to mind and I have pasted links below for you, so I sincerely hope that you find these useful:

Peripheral neuropathy

nhs.uk/Conditions/Periphera...

Complex regional pain syndrome - Symptoms

nhs.uk/Conditions/Complex-R...

I was very interested to read of your conditions and side by side they mount up to a great deal of symptoms for you to contend with and I was wondering if you have ever had an MRI to look for lesions on the brain that could spell Multiple Sclerosis? The only reason that I ask is that my wife has MS and she also has all of the symptoms that lead to the conditions that you have?

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

[Fra22-57]

I do have the body jerks and from August can't walk properly as body jerky tripping. Doctors in hospital said I was complicated with other auto immune conditions.I have had the deep vein MRI TheAuthor n told ok.Since complaining after been discharged I am now being referred to top neurologist. Thing is have been seen by other neurologist and they don't know but with these things there must be something Kaleidobrain and I hope they find an answer and help for you.Please let us know

[Kaleidobrain]

Thank you all for your replies.. Duly noted. I shall report back on the GP appt. xx

[Kaleidobrain]

I haven't ...actually its the first I have heard of it. But I shall investigate. Thank You.