today s dog walk: just got home from a... - Fibromyalgia Acti...

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today s dog walk

anbuma profile image
13 Replies

just got home from a rather wet dog walk-surprised fro (1)he wont normally go out in the rain and (2)even made his way to the beach even tho high tide and huge waves which he normally avoids.it was so hard fro me -with the pain and pressure on my ribs and them digging in.why doe s everyone get a diagnosis except me.

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anbuma profile image
anbuma
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13 Replies
Fibrofoggiest profile image
Fibrofoggiest

Sorry, I can't answer that one, but hope you find someone who understand you very soon :-)

Foggy x

I'm not sure and I'm sorry it feels that way. It's clear you are really anxious about your health, and anxiety can manifest itself in physical ways too. It struck me that you didn't accept the diagnosis of IBS because you'd read that women over 50 didn't get it, but that really isn't true you know? Anyone can get it, any age, both sexes...even my dog suffers from it. I'm not saying there isn't anything wrong, far from it, but researching different illnesses on the internet is one of the worst things you can do, particularly if you have health anxiety, as you can pretty much convince yourself you have anything. I really do think it would be worth it for you to pay privately for an abdo scan, just to rule in or out a cyst or tumour so perhaps you can remove that biggest anxiety, because despite what you have heard and read, the cases of missed diagnosis from a scan are so very rare, and particularly in your case if it's been going on for so long, and you say the abdo weight gain is so great, if there was a growth responsible for that, it couldn't possibly be hiding now, as it would be large.

Please don't be offended by this reply, I'm not saying I don't believe your symptoms, I just wonder if you are turning yourself inside out over worst case scenarios because of anxiety when the Dr may not be as negligent or dismissive as you feel. It is easy to get eaten up by these feelings, particularly when you live alone (like I do), and you feel no one listens. I am really only suggesting this out of concern for you, as I feel like you are torturing yourself more than is necessary. Please go for that scan. Warmest wishes from a fellow dog lover xxx

anbuma profile image
anbuma

no offence to you btu everyone has their own opinion.i have only spoken to other members re conditions and only researched fibro and what the doctors have said. if thats so then why have other members said they find scans inconclusive?and it was dear Babs (RIP)who told me that fact and why should she say that if she hadn't been told it.it says on NHS choices website that IBS is got by women under 40.anyway I DO NOT have symptoms-no diarrheoa or constipation.there is a story from a nurse who had eitehr ovarian cystsor OC and her dr insisted that was IBS but she knew different and it turned out she had .if it was then my GP should have said in the beginning not 18 months later.i have asked for referrals and not got them and have put questions to my GP .one lady who has the same symptoms as me and had had a polyp removed was referrred to gynae,i have had a polyp and gallbladder removed so it could be down to one of them.went to A&E on saturday and dr there finally gave me an explanation for upper abdo pain -not indigestion as dr s insist on but a problem with the valve to my stomach.

what else can I do I have changed my diet and made no difference.nto down to that.i have even stopped my beloved chocolate that I need to sustain me .I don't drink and I have never smoked .somehting is making my stomach swell and it is rock hard and weighs at least 11 kgs cos according to rheumy that is how much weight I have gained in 7 years-it s more than that as i have lost weight everywhere else.

in reply toanbuma

Please don't misunderstand me, I know that these things are real, that's not what I'm trying to say. I just think if you aren't getting anywhere with your GP, rather than get anxious reading things on forums from other members, or on NHS websites or whatever the source, your time would be best invested paying for a private scan to find out once and for all what is going on. It's like Maisie1 says, wondering and researching will only make things worse. I'm sorry if my opinion upsets you, but my Aunt went through this and she drove herself mad. I'm sure it would be possible to find someone to come with you to your GP and support you through this, as it's clear your relationship has broken down, but he needs to know how desperate you are feeling!

I'm sorry if it sounds tough, but your posts make me so sad, you shouldn't be going through this, and as fabulous as dogs are, they can't talk it out with you. If I lived closer, I'd come with you and tell this Dr how things have got for you as clearly for whatever reason, he isn't listening. Please take this post as the offer of support and friendship that it's meant to be, and don't think I'm one of the naysayers because I'm really not x

anbuma profile image
anbuma in reply to

I will and I hope I ahvent offended you.i really do appreciate everuyones support

Maisie1 profile image
Maisie1

I have health anxiety and if I have an appt. with dr google it makes me feel a lot worse. I am trying to trust my doctor but a lifetime if HA doesnt make things easy

in reply toMaisie1

Hi Maisie, my Aunt went through the same and in the end she, like you was able to see she was exacerbating her anxiety. It's so easy to feel like the Drs don't believe you, though in Anbumba's case, it sounds like her Dr is really unhelpful, and dismissive which is so frustrating. I suffer from Bipolar, and I really struggle to trust the doctors not to dismiss everything as being psychological! I have a really good GP right now, I think he believes me, but I was one sent home from A&E with meningitis because as soon as the bored/lazy doctor heard I was bipolar, he quickly dismissed my symptoms as being psychosomatic (no rash at that point). Fortunately for me, I had a very good friend who drove me to another A&E and omitted to tell them about the mental health issues, and it was caught in time. I'm quite sure it was just a rogue Dr, but as you say, it can be hard to put your faith in someone entirely.

I truly hope you are managing you HA better and have lots of support. Warmest wishes xxx

Maisie1 profile image
Maisie1

Thanks lipbalmaddict. I sometimes feel like I am wearing a label. Doctors don't seem to realise people with mental health problems can have physical problems as well

nedd profile image
nedd

You is not alone. The burden if having no definite diagnoses is an extra weight that adds to the nasty surprises the body throws up to haul around. And it's not helped by friends and family' expectations either. It's exhausting having to validate how you feel.

Good luck in your search. Good for you for getting out and about.

How lovely to live near the sea.

Ned

nedd profile image
nedd

I just noticed on one of your previous replies that you mentioned that your dog was behaving oddly? Do you tie this in with your body playing up or did I get the wrong end of the stick. Be really interested.

Could you send me a message cause I probably will never find your answer.

X

anbuma profile image
anbuma in reply tonedd

will do later on

Maisie1 profile image
Maisie1

Hi anbuma I am in the same position. I can't get a diagnosis and it is making me worse. There must be some reason for the symptoms we are getting. Take care

anbuma profile image
anbuma

have been trying to get an appointment with rheumatologist for ages now and still not happening -think he is not acknowledging pals efforts to arrange it.aslo 2nd request sent to dr to get re referrals to ENT/rheumy and gynae in effort to prove I have something more serious.

maisie-have you gone through any channels to try and get a diagnosis-compalinst etc

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