I am really fed up. Getting use to having Fybro and getting use to problems is causes are two different things.

[Evanda]

You wake up in the morning if you have managed to sleep and suddenly do not feel like doing all the things you have planned to do. Is is possible to get on top of Fybro so it does not rule your life. I have arthiritis and have had one knee replacement already which is not very good and causing a few problems and now I have fyrbro some days I really do not want to get up. I had major stomach surgery April last year and did not recover till a year later when they discovered I had fibro. I lost my job because I was off so long. I would really like to go back to work part-time but at 63 might find this diffficult. Previous employers wanted me to eventually try to go back but they have frozen recruitment now. I have of hobbies but need money for one of them. Husband does help me but he is retired and does not really fully understand Fybro or anything like that as he is very fit for 67. How can I take control of it all. I am applying for PIP again but went through a appeal etc last year and was turned down but that was on information up to year 2011. Things have changed since for the worse so may be lucky. I have joined a new local WI which does help and gets me out once a month and the book club once a month.

[jillylin]

Hi,

I hear what you are saying. I am trying to rebuild my life so that Fibro doesn't rule me, that I have more control over things. I am currently working with the Clinical Psychologist at the pain clinic to help me. If you have not already been referred to the pain clinic, I would ask your GP to do that for you. It doesn't solve all the problems but it does help.

Hugs

Jillyxx

[crop]

I'm newly diagnosed 2 months ago and have found the book by Claudia Craig Marek called The First Year: Fibromyalgia really e helpful in getting a grip on my life xx

[Julie63]

Hi Evanda, it is possible to get on top of fibro. I let myself off if I have a bad day & haven't managed to do any of the jobs around the house I had planned for that day. There's no use in being hard on yourself - there's plenty of others that will do that - be nice to yourself. I just remind myself of the things I Have managed to do that day, & even if it's just picking up some rubbish or tidying the cushions on the settee - I've done it, so well done me. And there's always tomorrow. Tomorrow might turn out to be a better day & I'll be able to do all the things I haven't been able to do today.

I think it helps if you think of yourself as living with fibro & not suffering from it. I try & keep smiling & being positive, & although at present that is hard to do - my hubby fell & badly pulled his thigh muscle yesterday, & I am waiting for an appointment at the hospital for problems with my voice box & swallowing probs on Weds - but I'm sure there's going to be a good outcome, I don't want to dwell on the things my gp told me it could be......

So, anyways, always look on the bright side of life, etc.,

Gentle Hugs,

Julie xxx

[haribo36]

Good afternoon,Iam so sorry to hear that you are struggling with your fibro.I really do understand as Iam too.Iam struggling to even have a wash and brush my teeth most days and I live in my bed clothes now practically.It really is hard when we are unwell physically and drags us down.Have you told your g.p how you feel?Are you taking any meds for your symptoms?I went to my g.p recently to tell her how I feel and she blamed all my physical symptoms on depression and said I was fit and healthy which Iam not,so i need to find a new g.p.Maybe counselling via your g.p or MIND might help you a bit as well.I find coming on this site a great help and support especially when Iam really struggling.I too would like to be able to work but sadly I can't ATM but who knows what the future brings.You should try to reapply for PIP eecially as you are worse now and it helps if an organisation like DIAL or CAB fill the form out for you.I really do hope that you start to feel better soon xxx