Hi.Has anyone on here been awarded lwcra for fibromyalgia?
Thankyou
Lwcra : Hi.Has anyone on here been... - Fibromyalgia Acti...
Lwcra
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Bertjolly
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you have to be severely ill to get this ?, I don’t think it’s in our category with fm, unless you have some very specific illness along side fm.
No you don't have to be seriously ill.
I would look into this a little bit closer M8, you do have to have a lot more wrong with you, if you are on dwp, and your circumstances are very bad, then they may transfer you on to this, while being transferred to uc , but the illnesses have to be in place, in the 1st place.
desquinnPartnerVolunteerFMAUK Trustee
yes they have. If you search you will see that it has but I believe you posted previously about this as well so I wonder if there is something more specific you are meaning to ask.
Hi , you may like to check through the replies from your last post on this question. The link below will take you to the replies from other members. Hope this helps. healthunlocked.com/fibromya...
Momo
Yes I have
Hi Diane Thankyou for replying.
Do you mind me asking if it was a difficult process to go through?
And any other information your willing to share.
I'd appreciate it x
Hi to be honest mine was really easy and quick. I had an phone assessment. The lady I spoke to was lovely and really understanding it didn't take long for my payments to start. X
Thankyou so much 😊 dreading mine will be face to face.
And if I'll be entitled to anything as hubby works full-time (postie hardly well off)and has a small pension.
He's my carer but can't get that money.
I sent the uc50 form back about a month ago x
Fingers crossed all goes well for you xx
That's very kind of you Diane.Thankyou xx
Your entitlement to disability benefits has nothing to do with anyone else's money or circumstances. It's all about you. All the best 😍
Hello Evonne 02.Do you mean my partner?
Aww that's very kind , thankyou x
No, the disability benefits system. It's solely about your application and not based on anyone else's income. Sorry, to not be clearer. Thanks 🥰
I have
Yes I’ve had it for a few years now. I also get both parts of PIP.
HelloThanks for replying.
Can you please tell me anything about the assessment stuff.
I get pip also.
I got the LCWRA before I got PIP. It’s going back some time now but l had a face to face appointment. He was very mean to me and tried making me do things that were clearly causing me pain and distress, like climb up on to an examination bed. I wasn’t even sure what was wrong with me at that point, I just knew I was ill and I’d had to quit my job after being on the sick for a while. I made a complaint about him and I was then given a telephone appointment. They just awarded me it after that. I’ve not had a review in almost 8 years. They must have forgotten about me 🤣 It’s less invasive than a pip assessment, as it’s more focused on why you are unable to work, not your daily needs etc. If you got pip I doubt you will have any issues getting LCWRA. Good luck!
Haha forgotten about me lol. What a horrid individual!!! Doctors don't know much about fibromyalgia.I'm glad you reported him, and got the award 😊
I was diagnosed with fibromyalgia 24 years ago.
I have extreme anxiety, have has since childhood so I presume that maybe on my notes.
I've also been diagnosed with depression again.
I'm so anxious about a face to face.
It's a fear.
I always feel they are looking at you thinking mmm she's lying .
I live in terrible pain.
All I can do it hope.
No appointment yet.
See what the post brings tomorrow
Thankyou for all your help xx
He wasn’t even a doctor he was a healthcare assistant 😅 if your anxiety is that bad they will not make you go in. I also suffer with anxiety and depression so I get it. A think a lot of it stems from being housebound a lot of the time. Xx
Oh seriously!!!! That's terrible! That must of annoyed you, it would of me.
I definitely agree with you about being at home more.
It's really bad, I take propranolol to calm. I won't be able to cope.
What would they do instead?xx
I get lwcra solely based on my fibromyalgia. The telephone assessment was pretty much like Pip asking about my day and what I’m capable of doing but without the descriptors.
Thankyou Scatty27.How soon after sending the uc50 back did you have your assessment?
Hi again scatty. Did they ask you alot about your fibro during the assessment? And do you think they contacted your gp,
No not specifically questions on my fibro. Just asked about my day to day and how I managed. I don’t know if they contacted my GP. Hopefully you won’t have to wait too long for yours.
Not too long. Within 6 weeks.
Yes
Yes, I got LCWRA despite the fact I only get the basic part of ADP and no mobility part at all. It was a phone call where she mostly seemed obsessed with how far I can walk (I can, but not fast, far or without exhaustion) I do have mental health issues diagnosed too which probably helped the process a bit (depression, EUPD and ADHD all diagnosed by consultant) as a friend who has a permanent nerve problem in her back and despite scans and a letter from the hospital to say it’s degenerative, causes constant pain and there’s nothing they can do to even try to help as any intervention risks it getting worse, who is definitely in more pain and more frequently than me only got LCW even after an appeal and only for a year, and they’re now hounding her to go back to work.
HelloI'm pleased to hear you got awarded.
😊
That's awful about your friend
How on earth can she go back to work, she must be worried sick.
That's so unfair.
I have a few things going on.
I also had a industrial injury many many years ago.
But I think because you wear a little make up they are like oh there's nothing going with her
Omg my health record must like a telephone directory.
I live in awful.pain every single day , barely sleep at night.
My anxiety is debilitating
My mum had electric shock treatment twice when I was a child. So it's affected me badly.
I don't know whether this worry about being entitled is worth it.
X
Yeah, I honestly don’t understand their reasoning - sure, she can be ok in a daily basis but anything can flare it up (basically a bunch of nerves is too close to her spine and they rub!) so she never knows if she’s going to be able to walk today as a leg might give way, or she might be walking but in agony - stress, cold weather, getting off the sofa at a bad angle - but she’s to get a job by January. What employer is going to take on someone who can’t guarantee ability to work from one day to the next I’ve no idea. It’s awful. But like you say, because she can show up for appointments and talk and put a face on, she’s clearly totally fine!
Omg!!! Well take a job and keep going sick, they'll soon get rid of her. And MAYBE they'll realise this lady cannot work.
It's a lottery all this!
I really feel for her.
Having hospital letters too, that back her condition up.
Makes me nervous to even carry on with this claim xx
