Feeling really down, please help lift... - Fibromyalgia Acti...

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Feeling really down, please help lift my positive spirit.

jb1967 profile image
9 Replies

I was diagnosed with FM 8 years ago I probably suffered with it for 20 years at the time, I've now been told that I have the signs of osteoarthritis I won't know for two weeks for x-rays come back but I'm 45 my daughter is 7, I want to do things with her that normal families do I find that hard now. Can anyone please help me through this difficult time xxx thank you for listening.

Jayne .x

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jb1967 profile image
jb1967
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9 Replies

Well i can empathise with you i have had fibro since before my son was born and diagnosed with osteoarthritis at 43 ......I don't know if you have a partner who can help but you will be amazed how resilient children are as long as they know they are loved and wanted they don't mind that you can't do everything with them..... I wanted to teach my son to swim as we lived 5 mins away from the baths but I had to settle for watching him at his lessons... He has been on trips I would have loved to have taken him on he has gone instead either with his dad or with friends families he's now 16 and has been abroad twice with the school ... When I ask if he ever feels he missed out he looks shocked and says no .. You were and are always here for me when I need you and as you are always in ... I know where you are....

So don't worry life has a way of popping up and making sure your children get treats and as long as your daughter gets plenty of love and quiet games and stories and girly time and watching films together she and you will have a strong bond

VG x

hamble99b profile image
hamble99b

to be told signs of osteo is useful. It means you should still be able do all you want to do, but with a little forethought and listen to your body.

signs are not severe damage, it doesn't mean your active life is over.

I think that any diagnosis usually comes as a shock and often leaves more questions than answers, it always seems a lot to take in.

carry on enjoying your family time with your daughter.

I'm not denying any pain or difficulties you may have, just sharing how I've found things.

regards,

sandra.

tofty profile image
tofty

I know how u feel hun im 57 n have got 2 young grandsons n I cant do all I want with them but I do my best n do things like reading, playing trains n jigsaws playdough .I pace myself but I cant take him out on my own to parks n things coz its just to much for me but I love to go out with my son n daughter in law as a family n I do as much as I can I don't push myself.im sure yr daughter will understand try things like baking or playing shop with her , swimming is good coz that will do u good aswell ,wot about little nature walks or now the weather is improving im sure she would love little picnics even if u only go in the garden children r easily pleased really as long as they r getting yr attention,do u have an indoor play centre were u live im sure she wud love that n u can sit n watch her while u have a nice cup of tea n maybe meet other mums ,try n keep positive coz this FM is not goin to go away n we have to make the best of things soft hugs tofty x

Ginsing profile image
Ginsing

I have osteoporrosis arthritis fibro the list goes on and as the years go by it is more and more debilitateing. However I try to do every thing I can with my four grandchildren and I know some things like swimming I will never achieve. You have to accept your lot and do other things with them. I love reading with them Exploring the garden ,drawing painting making things. They are all happy to come to me and enjoy our time together , I suspect what they have never known they will not miss. Be a wonderful happy person they will love you for it :) xgins

jb1967 profile image
jb1967

Thank you all so much, I feel a little better this morning, I think it was the shock. Amelia goes to swimming lessons and trips with friends, brownies and family. So she really doesn't miss out. Xxx chin up x

evie222 profile image
evie222

Hi Jayne

My heart gos out to you i have 3 grandaughters and the last 6 months or so i havent had a day when i am not in agony my whole being tells me to not to get up in the morning i dont really sleep i wake up with every part of my body aching Then i think about what i have a fantastic husband 4 lovely children and 3 beutiful grandaughters i get up washed dress and face the day i am in pain all day but we cant let this take over are lives . Try has much as you can to live your life dont let FM win . Keep your chin up try your best to carry on each day and just by doing that you will feel a little better .

jb1967 profile image
jb1967 in reply to evie222

Thank you xx

Smily profile image
Smily

I was brought up by my grandparents, who were not young and energetic as my parents were but I will always considered myself the luckiest person on hearth. The love, time and attention gave me all my professional parents could have never given me. So cheer up!!! I bet you are a wonderful mum - just make sure you take care of yourself. You being there is the WHOLE point for your daughter.

jb1967 profile image
jb1967 in reply to Smily

Thank you xx

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