On a downer: Well not good at this I've... - Fibromyalgia Acti...

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On a downer

painkillers1 profile image
13 Replies

Well not good at this I've got depression fibromyalgia

My oldest daughter curviture of the spine amputation club feet cleft pallet & lip

My oldest son ADHD

Youngest daughter wets & soils herself

Youngest son has dyspraxia & I think aspergers or autism, how do I get him diagnosed?

I am so tired down withdrawn how do I carry on?

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painkillers1 profile image
painkillers1
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13 Replies

You need to go to your GP and explain how down you feel and see if you can get some councelling and anti depressants if you are not all ready on them... My GP referred my son to a clinic who saw my son then booked him in a appt with an specialist in aspergers and autism .. She diagnosed him within minutes of meeting but carried out the tests and we got an official diagnosis for him which has helped so much.... Have you got a social worker who can get you some much needed support .... With you being ill and having children with problems you need all the help you can get .... Again I am sure your Gp can get you in touch with the right agency for the support you need... You don't mention a partner if you are on your own that is so much harder you need to ask for help it is out there..

Good luck

VG x

painkillers1 profile image
painkillers1

I've struggled on my own for years don't like asking for help my oldest is 24 I just got on with it I am on lots of medication thankyou

in reply to painkillers1

I am sorry you feel that you don't like asking for help ... But you asked how to get your son diagnosed with aspergers or autism... I have been through that process ... Please if not for you ...for your son .. Please ask your GP to get him diagnosed

VG x

scorpiolady22 profile image
scorpiolady22

Hia

Please, Please!! go and get some help. I cannot imagine what you are going through with all your family difficulties, but I do understand about feeling depressed. I suffer with fibro, disabilities and depression and know just how difficult it is to get out from the black pit of despair. You need all the support and help you can get.

Your GP should be able to refer your son to a specialist for diagnosis as well as arrange for your health visitor to assist you with getting help for the rest of your children.

The last thing you need on top of this is financial worries, so please ring or visit the local CAB, they have been invaluable with helping me to sort out my benefits.

I wish you all the best and hope you get the help you deserve.

Hugs

Nikki x

painkillers1 profile image
painkillers1 in reply to scorpiolady22

Thankyou

Chimbelina profile image
Chimbelina

Hi . . .I agree. . . It sounds like you are caring for everyone else and need someone to care for you too.

Your GP should be able get you the support you need so that you are able to carry on helping your family. They obviously need you to be as strong as you can be.

There is no shame in admitting you need support; it's just sensible!

painkillers1 profile image
painkillers1

Thankyou

suffolklass profile image
suffolklass

Hiya

As everyone says, you need to speak with your GP for some help and they can help advise you about your children.

I don't know how old your children are but my son was born with kyphosis (his spine bends forward) and scoliosis (spine is s shaped), along with a load more things. He was referred to an orthopaedic surgeon who monitored his spine over a period of time and they operated by "plastering" the vertebrae together. The Consultant described it as plastering walls in the house. He had a body brace for less than 3 months and the day after the op he was running up the hospital corridor with the nurses chasing him! You can't tell anything is wrong now with his back, he plays rugby, football and other sports at school. The only thing he can't do now is to touch his toes!

It is worrying when your kids are ill, especially when you're on your own. But for you to help them, you need to be strong and there is nothing wrong with asking for a bit of help.

Your GP can help you or get things started for you with all this. You've taken the hardest step by admitting you need help, the next one is easier. A trouble shared is a trouble halved...

I wish you well with everything.

xx

Hello

Sending lots of blessings and love to you.

sending the same to your family.

Theres hope, and help.

Good wishes x

ladymoth profile image
ladymoth

Hi Painkillers,

Lots of good advice above. It's admirable to be strong and to carry on by yourself, but there comes a time when you need to hand the burden to people who can help you.

You have a lot on your plate, and it sounds like your children need some expert care and attention so that they can get on with their lives.

Please ask your GP to intervene, and I'm sure he will be able to refer you for the necessary assistance.

I hope things get better for you soon.

Moffy x

With everything you have going on, I'm not surprised you're in a state, did you know you may be entitled to respite, which will give you and you're children a break from each other with people who care just as much as you do, you really have to look after yourself as well, in order to cope with all of the day to day ups and downs that life throws at us all. Good Luck.x

haribo36 profile image
haribo36

Hi there,you really need to get help from social services for yourself and for your children and some respite.You need to contact adult social services for help for you and children's social services for help for your children.I struggled for so long till I couldn't anymore and I was so frightened of contacting social services as I thought they mite say Iam not fit to care for my children but that wasn't the case at all.So don't put it off getting help as you might find yourself going more and more downhill like I did and I almost ended up being committed to a mental health unit.I wouldn't want anyone to go through the suffering I did,don't feel ashamed,you are entitled to help x

When you have been independant for along time yes it is difficult to ask for help but unfortunately you do not have much choice it seems. Sometimes it is the only way to the help you need.

Your son does need a diagnosis and its your GP or his school ask both they may even get together .

Social services are not only there to protect people but to help and they have been very good to me , give them a call explain your situation and they will help you .

Katheryn

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