Hi, I'm hoping to get advice from any other parents out there that have a chronic illness.
I have three boys (10yr old, 4yr & 2yr) . I was diagnosed with EDS at the age of 30. I am 36 now. I triggered fibromyalgia after the birth of my youngest son, 2 years ago. I don't have much support and it's been a real struggle getting friends and family to understand how tired and fatigued I am.
My eldest son has EDS and Dyspraxia so he requires more help than the average 10yr old.
My partner and I recently separated because of his lack of understanding of my condition.
I would be grateful to hear any advice or strategies from any other mothers.
Thanks M x
I'm so sorry you are going through all this, I understand your conditions (I have the same) but I don't have my own kids (I have worked most of my life with other people's kids but I'm single)
Its not easy to pace yourself during the school holidays, is there anyone you can ask for help? I would employ a cleaner for a few hours a week, at least if you can afford it?
You really have to pick and choose your battles and decide which things are the most important to do.
Planning is something that can help too, prepare stuff in advance if you got a bit of energy (cook twice as much and have a spare meal in the fridge/freezer for a bad day)
Being flexible with your diary helps too, if you have particular bad day, make it exciting for the kids without much energy needed: open the popcorn, close the curtains and have a pyjama movie day. Or phone some friends from the kids and ask if they can have a play date at their house?
Is your ex helping out with the kids at all? It would be great if possible so you can have some time to yourself to recharge your batteries.
Sending you lots of hugs, hope you get lots more tips and inspiration on this site. Take care