Hydroxychloroquine - anyone else been on this?

[Flowergirlhope]

Hello xx

Looking for some help in anyone who has been on this too -

I have auto immune issues (V high NK cells) and I was but on steroids, blood thinners and intrilipids when we did a FET back in September. Although we managed to get a positive unfortunately I had an early miscarriage.

Weve had a f/up with the specialist and he now has increased my steroids to full dose of 20mg and also wants to put me on Hydroxychloroquine 400mg.

I am just slightly nervous by reading all the side effects (although I know they don't happen to everyone!)

Has anyone else been on this protocol and how did you react to them /did you have any side effects?

Appreciate any experience

Mtxx

[JA-fnuk Partner Nurse Fertility Network UK]

Might be an idea to discuss your concerns with your consultant He knows your history - results - previous response to fertility treatment He should be able to help reassure you how he feels this treatment may be of benefit to you

Take care

Janet-Partner

[Flowergirlhope in reply to JA-fnuk]

Thank you - yes I've already been over this with him and it makes sense why he wants me on it.......just more wondered if anyone had an experience of any side effects when on them

[Flowergirlhope]

I don't think you even read my post properly....I already am under a consultant!!

[PRAYINGFORTHISTOWORK]

hi yes my daughter has this same protocol but also had lit treatment also which was successful x

[Flowergirlhope in reply to PRAYINGFORTHISTOWORK]

Thank you so much for your reply - could I ask did she have any side effects when taking them? They say to expect to have a tummy upset on the first couple of days taking! 😕Did she have this? X

[PRAYINGFORTHISTOWORK in reply to Flowergirlhope]

No she was fine, the only thing they said to her was she couldn’t be on too long as it can affect your eyesight. Also forgot to add she had acupuncture too x

[Flowergirlhope in reply to PRAYINGFORTHISTOWORK]

Ok thank you so much. That's encouraging. Yes I've got to have regular eye check-ups too because of this.Yes I'm also having acupuncture, which I have been doing for couple of yrs now.

That's so interesting about the LIT treatment....I've heard of this ..... I might DM you as I would be interested in knowing more on this.

Thanks again xx