Hi, I am writing this in a bit of a shocked state. I've gone from pretty much everything firmly believing I have exercise induced amenorrhea to being told the only way I will ever have my own baby is via IVF in the last 24 hours. My story:
Came off the pill last May and after an initial bleed nothing happened. I'd been on the pill 10 years so assumed a bit of time was needed but after 6 months of nothing I went to my GP who (reluctantly!) ran tests which all came back normal. I wasn't that waiting another 6 months, when I was clearly not working properly, was on so I used a private health insurance policy to get further investigation.
My ovaries were showing good, a multicystic but by all means ready to go. My uterus is slightly small and tilted but otherwise seemed okay. It was at this point that the exercise-induced amenorrhea was batted around - I am a keen long distance runner and ran 4 marathons as well as other races last year. It seemed the consultant thought the stress on my body was holding things back and hypothesised that reducing training significantly and either Clomid/injections to kick start things was the answer but first, to get these on NHS, as my private won't cover fertility treatment, I needed a hysteroscopy and laparoscopy to check for endometriosis and make sure Fallopian tubes weren't blocked.
I was doubtful about having the op; deep-down I believed that if I just lay off the training completely 6 months things would get back to normal, but I went ahead and had it yesterday.
She found some mild endometriosis which she burned off but the big surprise and show stopper was my fallopians. They are not blocked but the peristaltic motion needed to get the eggs from a to b was almost non-existent. Even if I had been ovulating, my body was likely reabsorbing the eggs as they hung around in the tubes so long, and if by chance I did conceive the chances of ectopic pregnancy are high. She rated my chances of natural healthy conception in the single figure %s. IVF is my only real shot.
To say I am shocked doesn't quite cover it. She said I am eligible for NHS cycles and we can get going straightaway, I am due an appointment in a couple of weeks.
I have to read up about things and I checked out my CCGs eligibility criteria. It states that both me and my partner must be childless. To everyone but us, our parents and my consultant we are but 20 years ago when he was just 15 my husband may have fathered a child - he did sign the birth certificate but his girlfriend, who was 16, was a known cheater. She left him and after only a couple of times meeting the baby she shut him out and he has had no contact or contribution since. He was just a child himself and the whole thing had a massive effect on him for years after. We have only spoken three times about it in the four years we have been together, the most openly yesterday when I came across the criteria.
I did a summary of this to my consultant at my original appointment and she seems like a very experienced trustworthy person, who I don't think would have told me so confidently that we were eligible without being sure. But I didn't find the childless thing until after. I have left a message for her to call me as I am obviously concerned.
Does anyone have any experience of any of the above to share with my?? I am lucky to have one friend who had her children by IVF but this was 17 years ago so things have probably changed (not the emotions I imagine, of course).
I have questions about many things.
Could we be exceptional circumstances for IVF? Given my so low chance of natural success and the fact that we have had no involvement in that child's life (and that there is question of if they really are his child)...
I have been looking at success rates and finding about 32% for my age range (I am 27). Assuming that the only thing wrong are nearly non functioning Fallopian tubes and we have good eggs & uterus & sperm, is that % likely higher or is just the chance that the embryos will implant that applies to everyone?
Am I right in thinking that, if we say we're lucky enough to have it NHS and be successful with one child first time round, we would no longer be eligible and have to self fund if we wanted a second?
That's probably just for starters. They are the biggest questions that stick out in my mind at the moment. Last night I stayed up till 4am watching rubbish TV to distract me and still ended up crying myself to sleep. I can already tell my husband is chewing up inside that one mistake when he was a child himself 20 years ago could make this journey a lot harder.
Thank you for taking the time to read this xx