Ccg - postcode lottery

[Stephj18]

Myself and my partner have already had our first ivf cycle on nhs in August but unfortunately it didn’t work for us. 😞

We did realise the rules have changed massively in our area and we now only get 1 cycle funded on nhs.

I decided to dispute this with our local ccg and it’s been a hard 3 months but I had a good back up from my gp and my clinic consultant that they saw us as an exceptional and thought we should be funded.

The dreaded decision letter has arrived and they rejected us because they don’t see us as an exception. 😢

I don’t have Fallopian tubes, myself and my partners health is normal with BMI etc and our fertility has been classed as good and I produced enough eggs on retrieval and they don’t see why it wouldn’t work for us second time round we just don’t have the Fallopian tubes so we rely on ivf.

How can they not class that as an exception???

what is an exception!? 😭 my energy is drained.

[AJJ123]

Did you freeze any of your embryos? I’ve had to pay for mine so I don’t know what’s included on nhs.

If you do a second round, pay to have them frozen that way it’s not all over if things don’t work out.

The next steps I guess are up to you, either save up for another go or if you have the option to appeal the decision go for it. If neither of you have children it seems unfair xx

[Stephj18 in reply to AJJ123]

We only had 1 embryo left on transfer day 😞

We don’t have children either I’m so confused by it.

We have our nurse consultation coming up in December so we’re carrying on saving xx

[AJJ123 in reply to Stephj18]

It sucks, that’s our government for you. Keep saving up, when you want something enough you’ll be surprised how quickly you can do something.

Xx

[Stephj18 in reply to AJJ123]

Thank you. ❤️ xx

[Dunla]

Steph I’m sorry to hear this. Fertility treatment is hard enough without this added stress. I know your energy is drained but can this decision be appealed? xx

[Stephj18 in reply to Dunla]

Tell me about it.

I’m not too sure... when I spoke to my gp she didn’t say it was an option so not sure if she thinks it’s wasting more months for them to reject again? Xx

[Dunla in reply to Stephj18]

I know and it just feels like every month is so precious when you’re tying to start a family doesn’t it? xx

[Stephj18 in reply to Dunla]

Yeah it’s awful 😞 we have our nurse appointment in December for our next cycle to start but we classed as private patients now so just save save save before then.

I don’t wish this on anyone.

Is yours a similar thing? Xx

[Dunla in reply to Stephj18]

Not exactly but we had to self fund four out of five cycles and I know it’s difficult saving and having to wait before you get started. We’ve been experiencing an awful delay with our clinic waiting to have any further treatment and as I’m 39 next month it just feels like precious time is slipping away 😕 x

[Stephj18 in reply to Dunla]

Oh no that’s awful ☹️ here for you. I know exactly what you mean with time! We started ivf in February this year and before we know it the new year is creeping up already. I’m quite a patient person normally but this process is so long. I just try to stay positive that the happy ending will come for us soon xx

[Dunla in reply to Stephj18]

I know, before you know it another year has whizzed past. We had our last cycle in Jan / Feb too and have been in limbo since. Definitely try to stay positive and let’s hope that the New Year has wonderful things in store for us both xx

[Stephj18 in reply to Dunla]

That is a long time for you! Fingers crossed the new year is a new journey for you and it’s filled with luck keep me posted xx

[randall55]

I would appeal. They reject, I think so many in the hope of no appeal. Take time to write a really good appeal letter and someone else will need to review this. Very best of luck x