Still feeling very low after my new consultant (one of the most recognised in the country) gave me the results of the three biopsies taken during the laparoscopy at the beginning of the month.
He had already informed me there have been some women my age (20) where chronic inflammation has been found, rather than endometriosis, although as I had my first laparoscopy at 17 and was diagnosed with endo and had it lasered at the time, I'm still shocked to know I've been given treatment - Zoladex injections, mirena coil, evorel patches etc. - for the last 3, almost 4 years for something that I now know I might not even have!
The consultant said as I've been on Zoladex for 18 months (he was surprised I had been prescribed it for so long as it is only licensed for 6 months) the treatment could've supressed the endo to the point the biopsies didn't pick it up so he's unsure if it could be chronic inflammation or endo, even a combination of the two. He is reluctant to do the excision I was expecting to have at the end of this month as it hasn't proven effective in other cases of women my age where chronic inflammation was suspected. (Fibrosis was also mentioned although with all the other information I was given during the consultation I can't remember exactly what this is until I receive a letter from him confirming the results.)
Scar tissue was found near the pouch of douglas and 'abnormalities' around the peritoneum, although he said fallopian tubes, womb and ovaries appeared healthy. Unfortunately he didn't have my notes as the courier hadn't delivered them in time so I was unable to see the pictures...
I don't know where this leaves me as he's suggested letting my body recover for 7-8 months and my periods to return before I need to go back to him for a second laparoscopy, where he will consider doing the excision. In the meantime I've been told PAINKILLERS are the only form of treatment which is devastating as I've been taking them for years already just to get by every day. Pain during intercourse is excruciating and the thought of waiting up to 8 months is devastating.
I guess in some ways the results are positive in the sense that my womb, fallopian tubes and ovaries appear healthy and the dye ran through the tubes and the mirena was removed at the time of laparoscopy, although I feel in a worse position now than I did before having the second laparoscopy as I don't know (neither does the consultant) exactly what is causing me all this pain and discomfort.