Hi! I new here but am struggling to deal with the new diagnosis and needed somewhere to rant and people to talk to, hope that's okay!
I apparently ot diagnosed with endo last year (I've had gynae ops since I was 9 as had ovary removed due to cyst) but found an endo specialist as my gynae wast taking anything I said seriously (I'm 23) and kept telling me to take provera to help the pain and that it would help with the pain eventually I just had to give it time. When you're in constant pain waiting for months isn't what you want to hear! Anyway me and my mum did our research and found a specialist who does this pioneering surgery to remove all endo. He did a diagnostic op were he took 3 biopsies to analys which came back at inflammation rather endo, which he has Said there is no treatment for. He has said he be happy to do another laparoscopy in 18 months as the inflammation could turn into endo. I was wondering if anyone else has been diagnosed with this and what has helped them? I'm stuck in bed with the pain most days and have had to stop my nursing degree as I was missing too much so am pretty low at the moment.
Sorry for rambling on x