I have had painful periods since 11 and went on pill at 16 to stop the cramps and heavy flow. It did a good job until I came off the pill at 30. Always had bowel symptoms before, during and after periods. Like really bad cramps and loose movements. Sometimes that is worst than even the period pain.
Anyway at 30 had a query miscarriage and ever since then I have been investigated for bowel pain, bladder pain but they finally decided it was gynae related and gave me the label of endometriosis. For fifteen years I have been waiting for a proper diagnosis they always just worked on the presumption of it rather than just making sure. I have had three lots of 6 months zoldex starting in 2005 and those helped.
I'm 45 and never been able to have children, not sure if it due to infertility as never had it investigated. In last three years I have gone months of heavy bleeding with no let up. Taking a week off each month from work due to the chronic period pain and bowel symptoms.
I had a hysterscopy last year where they fitted a mirena coil which has helped with the flow situation but ended a having a pelvic infection for months after. I already know I have fibroids but they never discuss removing them. Smears always been okay but they are always extremely painful as my utersus is tilted and they always use the wrong sized instrument.
Finally they decided to do a laparoscopy in Feb which I had on Thursday and the consultant who was different to the ones I have seen through the saga said I had no endo and no need for follow up. I'm so frustrated that they are leaving me like this, clearly I still have something wrong to have all this pain every period. I'm wondering if i have the kind that is deep in tissue rather than on surface or is so small they can see it.
The consultant came to see me when I was groggy said I had a bulky ovary and something bulky on my bowel. She didn't explain what that meant. Nothing is mentioned about it even on the discharge summary,
I work in NHS and so frustrated. I am making an appointment with my gp who is so supportive to find out what I can do next. I wonder if I need to see a endo specialist at one of these centres I have been reading about. I really don't know what else to do.