Hi everyone, just wanted to mention I am completely new to this website and just feel so alone and sorry that this post is so long!
I have been having problems with my periods since I was 14 and I have just turned 24 and over the past few months it has been getting worse.
When I was 14 my periods used to be really irregular and very painful when I had them so my mum suggested when I was 17 to go on to the Pill to try and make my periods regular and a bit lighter. During this time I also used to feel sick and have bouts of diarrhoea on the 1st day of my periods, sometimes it was this that let me know it was about to start!
At first I was put on Microgynon which helped until I was about 20 when I started to have spotting and so my doctor told me to come off them for 6 months. During this time I used to get pain but no periods at all (if it helps I am underweight- I am 5"7 and 50kgs but I have been naturally like this for over 7 years and my mum was naturally slim).
Therefore I went back to the doctor and said I have had no periods so they put me onto Logynon- again this worked until last April when the bleeding started again and had a bout of diarrhoea with my period, usually if it's one way or the other it is generally normal-constipation.
So I saw my doctor and they asked me to have an abdominal ultrasound and a trans-vaginal one, on the abdominal one it said one of my ureters was slightly larger but my trans-vaginal one was negative with no signs of ovarian cysts or anything so my doctor just said it was just IBS but I felt there was more to it than that. At this point I was still taking the Logynon. Sex with my bf was so painful as well but as he is my only partner I thought it was normal but it is getting so much worse.
Then in February it got much worse. Mid-cycle I would start having higher bowel frequency, going 3-4 times a day but not diarrhoea just normal and in early March I had such horrendous cramps with my period that I was bedridden and couldn't go to work. Went to work the next day and looked terrible so I got sent home being told to go to the doctor. He gave me new contraceptive pills (Rigevidon-new Microgynon) and since then I have had dark discharge almost everyday, really pinky brown (sorry TMI)
Then in April, I got struck with such severe pelvic pain around mid-cycle that I had to go to hospital and got sent home saying it was IBS. Was back the next day because I was in agony and noticed the discharge was still there and mentioned it and said I need to be checked for STI's (my bf and I were both virigns and have been faithful). Therefore I went to my GP as an emergency as I was still in agony and he did a pelvic exam which was so painful as he was doing the swabs to test for infection that he couldn't even do the cervical smear (which he told me shouldn't be necessary as I am under 25). Gave me antibiotics in case it was an infection but didn't feel any better and by this point I had been off work for almost 2 weeks due to the pain. Results came back negative and was referred for another trans-vaginal ultrasound which also came back normal.
I have also obtained a copy of my GP notes as I was trying to process a medical insurance claim through my private insurance to see a gynae (wasn't successful) and they said they suspect it could be endometriosis? I have asked the doctors outright if it could be this as my u/s came back clear and they said yes but that they didn't want to refer me yet as they will just ask me to take different pills like the doctor has asked me to. I am now on my 4th change of pill (Marvelon) and still have the discharge and still have horrendous pain which I have to grin and bear, use painkillers and heat patches for.
I just feel so alone as it is impacting on everything, my bf is amazing but I want to be able to have sex with him and not have him feel guilty that he is hurting me, being off sick from work because of the pain and I don't even want to make plans in case I fall sick.
Does this sound familiar to anyone? Could it be endometriosis? How can I get my doctor to refer me to an endometriosis specialist?
Thank you so much for taking the time to read this.