Hi, just wondered if anyone else having similar issues. Very long story but 6 years ago I had my uterus, tubes, one ovary, appendix and extensive endometriosis removal. Then 2 years ago I had my remaining ovary removed, this time with just a general gynae as middle of covid and I just needed help. After that surgery I was told endometriosis was wrapped around my ureter but they had freed it. Fast forward to a few months ago when I started feeling really uncomfortable, after lots of visits to gp I finally got a scan and discovered I had a grossly enlarged kidney, ureter had been cut off. 3 months and many scans later my kidney is the size of a melon, doesn't work at all, is extremely painful and unbearably uncomfortable. I'm having it removed in 10 days. Another massive surgery.
I've never come across anyone that has experienced this. Also what next? My other kidney? My liver? Endometriosis has literally taken over my body and my health.
😨 I am so sorry. That sounds absolutely horrendous! How is endometriosis still in your body now they’ve taken your uterus and ovaries?!
If you have implants and they miss any or don't excise them by getting to the root then they grow again. Endometriosis has its own estrogen (not sure how it works tbh). That's what I've read in studies and research im.doing on this horrible disease.😒 im no medical expert, so can correct me if im wrong.
I think if you have even the tiniest bit left it can grow. I don't think covid helped as I couldn't see the surgeon that I needed to see last time x
Thanks ladies. What a horrible condition x