Hi, just wondered if anyone else having similar issues. Very long story but 6 years ago I had my uterus, tubes, one ovary, appendix and extensive endometriosis removal. Then 2 years ago I had my remaining ovary removed, this time with just a general gynae as middle of covid and I just needed help. After that surgery I was told endometriosis was wrapped around my ureter but they had freed it. Fast forward to a few months ago when I started feeling really uncomfortable, after lots of visits to gp I finally got a scan and discovered I had a grossly enlarged kidney, ureter had been cut off. 3 months and many scans later my kidney is the size of a melon, doesn't work at all, is extremely painful and unbearably uncomfortable. I'm having it removed in 10 days. Another massive surgery.
I've never come across anyone that has experienced this. Also what next? My other kidney? My liver? Endometriosis has literally taken over my body and my health.