I was diagnosed with endometriosis in 2005 after an incidental finding of a cyst on my left ovary for which I had a laparotomy and ovarian cystectomy. I had no symptoms at the time but for the past 4 years have been continuously in and out of hospital with severe pain. I have had about 4-5 laparoscopies for drainage of cysts etc but am still in agony. I was referred to an endometriosis specialist in September last year and she was planning surgery to remove endo. I have not had any children yet as have been trying but it's not happening. Following a recent MRI, my consultant has today informed me that the endo is so severe that it is deep in my bowel and all over my uterus. The only option is hysterectomy but even then I could end up with a colostomy.
I haven't had children yet n desperately want a family but am stuck between having the op and losing all chances of having children or living in pain all the time. I am on super strong analgesics including oramorph and even then am still in pain at times.