It's only a few weeks since my endo was diagnosed and I've now been advised to have a TAH due to fibroids in uterus, and removal of both ovaries to stop more endo growing ( & the right ovary is badly damaged by cyst anyway). Excising the endo alone apparently wouldn't stop the pain as fibroids would still be there and the endo would likely just keep growing back.
The consultant has said I won't be able to have HRT due to the endo - so I will have to undergo surgical menopause 'cold turkey' (I'm 42). Due to adhesions there's a risk of bowel and kidney damage which frightens me. Apparently I have scarring and haematomas all over due to old endometriosis and the consultant said I have probably had endo "for years".
I would do anything to get rid of the pain, but I feel shocked and resentful that this wasn't diagnosed earlier, when it could possibly have been arrested before the endo started to cause all the adhesions.
From my experience and reading other forum posts I do feel "IBS" seems to be a catch-all diagnosis by GPs (and not just for gynae issues!), as that's what I was always told my abdo pain was caused by (plus 'normal' menstrual pains ... 'normal' in my case included vomiting and feeling faint on the worst occasions but apparently that's regarded as normal). I just wish I had known more about endo as it simply wasn't on my radar when I was speaking to doctors.
(Apologies for 'venting' but needed to get this off my chest.)
If anyone is reading this who thinks they might have endo - could I just say, don't let your GP fob you off by saying it's IBS or 'normal' menstrual pain - insist on a proper investigation - I wish I had.