Hi . I am having worse pain after lap than I ever had. I'm 3 months post lap.
I'm 42 and had the lap due to infertility, endometrioma and was told I had hydro salpinx. . Also I was starting to miss period cycles. I had various pains for years. Some severe. Mostly bowel related and more recently ovulation pain. All my pain was manageable. I was having surgery for infertility not pain. I was only just diagnosed age42.
During the lap. They found kissing ovaries. Cysts on both ovaries. Lots of endo and severe rectal vaginal endo. Lots of adhesions and a hood of adhesions over whole pelvis. In summary deep and severe endometriosis.
He fixed what he could, but left the rectal vaginal endo as too risky to address.
Post lap, I had a drain site hernia that needed repair.
Since surgery, my bowels working better than ever and periods are regular.
However, I have huge problem with new pain. I have constant pain and burning over bladder area. I have severe rectal and back pain. My tummy feels full and heavy. .the last period , 3rd since surgery was very painful.
I've seen the doc, ultra sound normal. Next review in 1 year.
Has lap triggered worsening endometriosis for anyone? ?
I wish never had the lap. I'm off work. Not able to exercise with comfort and obviously still not pregnant.
So now I'm childless and in poor health.
Might I still recover?
Written by
Malahide36
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I am so sorry to hear about your pain! I must say, I had terrible, uncontrollable, excruciating pain that started 3 weeks after surgery until about 3 months later.
I also thought something was terribly wrong, I thought the Dr had done something wrong.
I also kept feeling that I had a constant bladder infection. I had 2 rounds of antibiotics, and it went away for a bit but came back and wouldn't leave. I did some research, and because of all the invasive surgery it can cause irritation to your bladder. Also all the medicine and especially the catheter they put in.
I use a plant called Kefir, we put in a big jug of water on the windowsill to let it "grow"
You can buy it at a local health shop or online, but don't grow it in milk, use water
I drink about 1/2 to a full glass once per week, and it has cured my bladder infection!
Then, regarding the pain. I think you have something called long-term post-operative pain, or Postoperative neuropathic pain (PONP)
This is what I think I had, and once I understood that my body needs time to heal, I tried to relax and manage the pain. Every surgery has it's complications and side effects, we have no idea what muscles or nerves were damaged during the surgery.
I hope this helps you a bit, it helped me. I am now 5 months post-op and I still have pain now and then, but it's much better than it was. In relation to my terrible periods, cramps, bowel problems, hormonal issues caused by the cyst, etc, I am not sorry that I had the operation. My life is a 100times better now.
Thankyou so much for taking the time to reply. I was at end of on tether with worry that I was alone with prolonged post lap pain.
I feel much better having read your reply and more hopeful. Thankyou for the tips and links.
It sounds like we had very similar pain especially the bladder thing. I too got an antibiotic which helped short term only.
I feel more hopeful now.
It's such a lonely condition really and last night was the first night I ever posted to a forum. I can't believe how much better I feel knowing I'm not alone and there's light at the end of the tunnel.
I was also diagnosed at age 42 and have had 3 laps all tighter.
Recovery can take long but also, I am wondering if your consultation has seen any sign of Endo on your bladder area. Also, maybe rectal vaginal Endo may cause such pain?
Maybe worth asking her/him your questions.
Also, there might be someone else who can handle recto vaginal Endo, your consultant can make a referral?
I tend to bypass my GP and contact my consultant’s secretary which can take a very long time to get me an appointment but eventually I had appointments and had another lap recently.
When I had an MRI after a major surgery 3 years ago, nothing showed so my consultant thought I should just live as it was. However, I managed to get onto a waiting list for another lap. Which showed further adhesions including recto vaginal area and new growth of Endo. What I have done is to explain what I am suffering from and made suggestions to remove Endo and some organs. Not all requests and suggestion are taken on board, of course.
Nobody seems to want to help me so I find I need to voice my concerns and act upon what I want to have things done for me.
Hope you can get some support from your GP or consultant.
If not, maybe try to find a consultant who might be able to help...
I had my lap in September and I am only now starting to feel better. Pain in the lower back has been a constant and I have even had 2 ultrasounds done as I was 100% sure I had cysts again, since the pain was so bad.
I went to see my doctor two weeks ago and was finally released back to the care of my gp, after all tests came fine. I wish they had told me that pain would be normal for so long, I have spent a lot of this time worrying and feeling very pessimistic. I feel much better now that I know endo has not come back, and that I am (almost) pain free.
Thank you so much. These replies have really helped me. . I'm getting so worried. In fact my family are more worried wondering how I can go from so active to constantly complaining of pain and needing to lie down .
It is reassuring to know you took so long to recover but made great recovery.
I agree. I wish we were told it can take time.
I'll still definitely never go near a surgeons knife again and just hope I recover from this like you have.
Sorry to hear of all your suffering. I recently had a lap 2 months ago for Deep Inf Endo. My symptoms became so bad I was in and out of hospital for 4 months. I paid privately after giving up on the NHS, I waited 7 years.
I am now dealing with a pelvic floor dysfunction from all the chronic pain/spasms I recently had. My pelvic floor muscles have become so tight they have locked. All the symptoms are the same as Cystitis. I kept thinking I had Cystitis. I took 3 different antibiotics to no avail.
I went to an Endometriosis event and one the lectures was on this pelvic floor dysfunction. I saw a urologist and he just prescribed drugs and did not bring up the endo link. It’s very common if you have Endometriosis.
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No problem, hang in there
What now?
Still in pain 3 months after first lap. GP has prescribed amytriptiline for pain management. Has anyone else tried this? 
Urgent- can anyone please help? Surgeon advice
REALLY Confused - Can Anyone Help? Are MRI Scans Useful For Confirming Endometriosis?
