Magic lap hasn't much difference, what ha... - Endometriosis UK

Endometriosis UK

72,733 members53,171 posts

Magic lap hasn't much difference, what happens next?

IggiePiggy profile image
3 Replies

Hi

I had a lap 8wks ago when I was diagnosed, and had a chocolate cyst drained on my left ovary, polyp removed from my uterus and endo removed including in my pouch of douglas. I had a follow up 4wks later and was given Vesicare by my consultant as I had pelvis pain, and pain on urinating.

I got the impression from my consultant that the lap would cure everything and I wouldn't have any more pain. From reading some if your stories on here I can see that women continue to suffer, and go on to have more ops and treatments.

I don't know anyone who has this illness and feel really in the dark. I've got another appointment with my consultant in July but what will happen next? I just feel down as the tablets haven't worked and I still have pain in my pelvis.

IggiePiggy X

Written by
IggiePiggy profile image
IggiePiggy
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Noggsy profile image
Noggsy

Hi IggiePiggy,

Sorry to hear you are still suffering. After my lap the pain got worse after a short while and a consultant suggested it could be I have adenomyosis (which is endo but in the uterus wall). Nothing was done further because I was TTC.

They can't really diagnose this, so I don't know what they may suggest?

It may also be Vasicare may not be the right pain killer? It may be worth phoning up your GP surgery and ask to speak with a GP who specialises in gynae and ask them maybe? I do this - and I now see the GP Gynae all the time - she is great.

Noggs x

IggiePiggy profile image
IggiePiggy

Hi Noggs

Thanks for your reply. I've been to my gp today and she thinks I may have an infection and has taken samples and given me antibiotics.

Vasicare is to stop frequent and pain urinating. The consultant thought my pains were bladder related but they're not.

Hope you're having a pain free day.

IP x

stevieflp profile image
stevieflp

Hi IP,

Sorry to read of your pain and experience.

First thing I would say is a lap is just the term used for the type of operation (i.e. it is keyhole surgery as opposed to open surgery). The result will depend upon what work is done via the lap. This is why there is such a big difference in outcomes. Some don't have any work done at all and the surgeon just has a look, others have laser, others have patch excision which does what it says on the tin but at a deeper level (laser just burns off the surface) and then there is the big one which is radical excision - where the whole lining of the peritoneum is removed and thus all seen and unseen endo, including sites where it has yet to appear - all done keyhole). The outcome will depend upon how you were treated.

Second thing I would say is make sure you are seeing a endo consultant. Have a look at the website of A K Trehan . He is up in Dewsbury so you may well not be in his catchment area but his site is very informative.

I tend to bang on about this because I had radical excision 16 months ago and have been right as ninepence since - no endo pain whatsoever and back to the gym with no time as yet off work endo related. Mine was recto-vaginal, on bowel, bladder, diaphragm, ligaments, on uterus, ovaries . . . ).

It just seems to me to make more sense to keep your healthy organs and get the endo removed. No HRT needed either. If you have endo in the muscles of the uterus then it is a bit different but you still don't need to lose ovaries unless there is some other reason. Mine were totally stuck up and had large chocolate cysts but with a skilled surgeon (I had temoorary ovarian suspension whilst healing so they were less likely to get re-stuck), I still have them.

I wish you well in getting the very best treatment that we all deserve.

Not what you're looking for?

You may also like...

My lap hasn't worked, please help. I don't know what to do next.

I had my lap ten days ago and the same pains have been back with me for about a week now. Despite...
Mitch15 profile image

What happens next?

So, I had my laparoscopy on Friday just gone and I am recovering. The pain is worse than I thought...
Georgia03 profile image

What to do next?

I feel like I'm banging my head against a wall at the mo. Im in and out of hospital, shuffled...

Lap next week

I am having my 3rd lap (just exploratory) next Tuesday. I got a phone call from the hospital and...
shukudai profile image

worried about laparoscopy what happens next?

Hiya I'm new here. Im due my lap on the 1st Feb after a long wait and countless other...
sara89 profile image

Moderation team

See all

Top community tags

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.