Is the mirena coil making me this way?? - Endometriosis UK

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Is the mirena coil making me this way??

Sammiestock profile image
6 Replies

Hi, I have had the Kiera coil fitted 18 months since having my 3rd laparoscopy for severe endo. Everything has been fine , my period stopped but for the last 3/4 I have had pain again, my moods are horrendous and my passion for life and tolerance for people is thin! As well as the weight gain and acne these last months.

Could this be the coil after all this time? Or is it just me?? Can you have side effects at any point?

I’m seriously considering having the coil removed and just put up with endo ( this was my last resort before having a hysterectomy) but I’m feeling so crap I will to put up with it.

Any advise would be much appreciated.

Thank you xx

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Sammiestock
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6 Replies
Sammiestock profile image
Sammiestock

Sorry for typo * mirena coil

cottoncheekz profile image
cottoncheekz

My sincere advice to you is trust your instinct. I had Mirena placed in November 2020 and I regret it. In the first four months or so I bled a lot with only two days intervals without bleeding . I started to have recurrent UTIs, infections and abdominal pains etc. All my symptoms my doctor claimed could never be the Mirena. When I finally decided to get it removed it couldn’t be. Did two ultrasounds and it did not show. X ray showed the Mirena in my pelvis. Going to have it removed surgically under general anesthesia. In the end, if you think you should remove it then get it out. Don’t delay like I did.

Sammiestock profile image
Sammiestock in reply tocottoncheekz

Thank you so much for tour response! Your experience sounds awful.I agree, I think I need to trust my own instincts and have actually made the necessary steps to get it removed.

Thanks for replying, means a lot x

I had my mirena put in March 7th 2019. The worst and most painful thing I've ever had done. I'd been kinda forced in to having it as a last resort, because they wouldn't consider hystorectomy until I'd tried it. It took a long time to settle, with frequent bleeding, pain and generally feeling rubbish most of the time. I had about 6 months last year, no bleeding and very little pain. But now, in the past month or so, I've had constant niggling pain, which can get really bad at times. Headaches, my skin is horrendous, either very dry or I get acne breakouts. I'm constantly moody and irritable, and spotting frequently. I feel permanently on the verge of coming on, and I'm fed up. I'm booked in tomorrow to get it checked, but I'm honestly considering pushing for hysterectomy. I'm so done with all this, I'm 37 and no plans for any more children. I know it's not a cure for endo, but it would likely improve my quality of life which is what I desperately need!

Sammiestock profile image
Sammiestock

Oh my goodness! My symptoms of the mirena coil literally mirror yours 😔 it’s so awful isn’t it!! I just don’t feel myself - that’s the only way I can explain it !!Mine also was last resort , before hysterectomy ( but I was too young at 40) I hope you get on ok and your get the advice and actions you want.

You must let us know , take care xx

Knina profile image
Knina

I have similar symptoms. Anxious, crying a lot, not tolerating people. And pain is back for several moths now. I am now on nerve pain "killer":) Cymbalta for 2-4 moths. It helps a lot with pain and my mood is better. I am re-staring PT at the end of the month to relax my muscles with cymbalta's help. Hope PT will help so I do not need to take Cymbalta more than 2 months. It was very surprising to me that I have nerve pain mostly because my muscles were so tight. Maybe you can talk to your doctor about it. I am considering taking Mirena out as well because of the mood changes.

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