When will the pain go away

[Cazywazy]

Hi I had my laproscopic surgery Monday. I had cyst removed and my bowel treated/ endo removed, I’m still getting really bad cramps I did have the coil fitted so not to sure if this is causing the problem. Has anyone else suffered with this? If so how long did it take for pain to calm down thank you

[Danijordi88]

Hiiiiii, I had my surgery 8 weeks ago. They didn’t treat my bowel and bladder Endo but I had severe stage 4 Endo as well as being riddled in adhesions and large cyst removed. I did too have a coil fitted.

I saw your post and though I will reply as I really really under estimated how bad I would be post surgery. The general NHS notes says general generic recover times. They lie 😂. I spent weeks 2-4 really frustrated as I didn’t feel like I was getting any better and my belly was so swollen! With 2 kids it was driving me crazy and I went from crying to okay in 0-5 minutes. By the end of week 4 I said I was going to spend a week with my feet up no pottering about and taking vitamins and plenty of fluids and by the start of week 6 I did feel a lot better.

I had the marina coil fitted and I’ve been passed string like blood mucus for this whole time up until 4 days ago! It was driving me mad! I’ve also noticed a massive difference in my tummy going much flatter this week. I did go back to work week 6 in reduced hours and last week for my first full week.

What I am trying to say here is that the recover is not an over night thing. I was popping painkillers like sweets for at least 4 weeks and even antibiotics for a wisdom tooth infection at the same time! I felt like I was rattling with everything I was taking. Just give yourself time. The work that has been done is all internal and you can’t see what they have done to you. So just try to be patient. I did read a few posts on here during my recovery and whilst every one is different I did read a post from a lady who said it was 6 weeks before she felt up to resuming her usual routine. Her post really stuck with me.

You can do this, just be patient. Good Luck

[Cazywazy in reply to Danijordi88]

Thank you so much for your reply, I think I’ve been putting too much pressure on myself to feel better and thought doing a few things around the house wouldn’t harm but I was so wrong. I’m going to listen to what people are telling me and take as much time as I need. Did the coil cause you cramping and has the bleeding stopped now? X

[Cazywazy in reply to Cazywazy]

I also totally understand about the emotional side of it, it’s driving me crazy one min I’m fine next min I’m feeling really low. X

[Danijordi88 in reply to Cazywazy]

Because both of us had the coil fitted at the point of surgery I cannot say whether or not the cramps were from surgery or from pain. I was so paranoid about getting an infection I bought I digital thermometer and checked my temp all the time as that is the first sign something is wrong. I did have cramps and the mucus being lost, but thinking about that now cramps, mucus and tummy bloating are all post coil fitting symptoms anyway.

It wasn’t even bleed which was more infuriating because I was think oh is this what I get now constant mucusy blood forever or the other evil of being floor with Endo period/symptoms every 2 weeks. Thankfully it stopped about 4 days ago and my surgery was 28th April! I am still getting some discharge but it’s not bleed red now so I am thinking it may be the coil than the surgery. X

[ckem95]

Hey,

I was in a pretty similar situation plus some excision on my bladder and around my ovaries. It’s frustrating as anything but the only thing I can tell you is that it’ll take time. I think 2 weeks recovery is a complete joke if I’m honest... I’m sure there are some people who bounce back but everybody I’ve spoken to has said 4-6 weeks to start feeling normal, and 2 or even 3 months for it to be completely settled. It’s all individual.. I’m 8 months in, I’m on the mirena coil and I ended up taking a progesterone only pill 4 months to stop my bleeding/cramping (I am a bleeder though - lots of people I’ve spoke to it settled after 6 weeks). I’m still not 100% but it took about 5/6 months for me to start getting back to normal routine and I’m honestly still not completely there yet - that’s down to some complications mind you, I hope it won’t be the same for you!! I think you can get some cramping with the coil, but a lot of it settles down within the first few weeks.

Take regular painkillers, long hot water bottles are great (you can get them at Argos) and Colpermin peppermint capsules can help with some of the bloating and pain you might be getting from the inflammation from your bowel. I also found that anything spicy sent my endo into an absolute bitch fit until a few weeks afterwards 😂

Even when you are taking it easy, make it so it’s a routine, try to get lots of sleep. Some gentle yoga can help if you’re into that. Remember, the scars on the outside look small, but if you’ve had cyst removed + endo and removal on the bowel, the scars on the inside are going to be bigger. Sounds obvious I know but I struggled to take it easy until I was told.

I hope you start to feel the benefit soon, it’s so frustrating feeling stuck in this situation.

❤️

[Cazywazy in reply to ckem95]

Thank you for your reply and advice I’m going to listen and do everything I can to get myself back to me again. How long did you leave it before leaving the house and did this tire you out? X

[ckem95 in reply to Cazywazy]

No problem 😊

I had people come to me for the first few days so I didn’t go loopy, but I actually went out properly at the end of the first week as I had a family birthday and it did tire me out... I think as long as you feel up to it going out is really good for you - it’s no fun being cooped up and it will only get you down. The one thing I would say is make sure you have an escape route and for the first couple of times have somebody with you! If you start to feel tired come home and rest, and if you plan to do something bigger on one day make sure the next day is super relaxed so that if you do get worn out you can recover yourself.

Cinema trips were golden for me when I was still cramping and in the early stages, I even took my hot water bottle in with me😂 but just getting out of the house for a couple of hours and feeling human again was an achievement.

Start small, work your way up. But do get out of the house or you’ll drive yourself mad!!

💕

[Cazywazy in reply to ckem95]

Thank you it will be a week tomorrow since surgery so I’m going to go and see a friend my husband is taking me I will see how it goes need to get out it drives you mad. X

[ckem95 in reply to Cazywazy]

That sounds like a good plan to me. Take care of yourself x

[Cazywazy in reply to ckem95]

Well it didn’t go to plan I left the house got 5 mins away and nearly fainted and had a panic attack and that’s never happened to me before so I’m now back in bed. I just wish the Drs told me how important it is to rest and how bad it affects you just doing little things. Thanks for listening and replying to my posts x

[ckem95 in reply to Cazywazy]

Oh no, you poor thing 😔

I know, I wished the same when I was at your stage. I even went to the acute gynaecology unit near me afterwards thinking something must be wrong, she was the one who told me to rest and take things slow but by that point it was too late and I’d already had it taken out of me.

You will get there, I promise, just be patient. I know it sucks. Find a good tv show to binge and treat yourself to your favourite snacks. Get the hubby on it!

You can always message me on my account if you need anything. Endo sisters have to stick together, not a lot of people get it... x

[Cazywazy in reply to ckem95]

Bless you your very sweet it means a lot to talk to someone that understands I really do appreciate your help x

[ckem95 in reply to Cazywazy]

It’s honestly no problem. I would have been lost without any help. Take it easy sweetie x