Hi, so this is a bit of an embarrassing one and I've been egging myself on to ask others. So when I'm on my period, or in the week of my period where the flare is bad but I'm not bleeding because I take the pill which minimises the bleeding significantly, I still get a significant amount of blood that comes with poop. I don't go as often as I used to either, I know medication has a part to play but even up until a couple months ago I was still quite regular, I was.womdering is this normal for someone with endo? I have my lap in 4 weeks so I will know what is happening for sure but I am worried about this because of colostomy bags ect. I feel so silly for even thinking that far ahead but it's so painful and it just hurts and it feels really lonely! Does anyone experience the same sort of thing? And has anyone been diagnosed with deep Endo because of this? ❤️
Embarrassing bowel question 🫣: Hi, so this... - Endometriosis UK
Embarrassing bowel question 🫣
Hi, have you got endo on your bowel? Not fully sure what question you are asking is it about the loss of blood when pooing or the struggling to poo? Either way I have both! I do have endo in my pouch of Douglas and I think a flare up would block the blood and the poo then it would all come away once I finally managed to go! I’m on provera now which has stopped my blood and flare ups and bowels are a lot better. Not great but better. I do take a strong dose live pro biotic which helps a lot and a strong multi vit before bed and that generally keeps me all ticking over and a happy belly. I do always have a suppository at hand tho for the times I’m in pain due to bowel blockage! Hope any of this helps you xx
Sorry I wasn't clear! But you've hit the nail on the head, I am worried about all of it, and I guess it's all just very overwhelming when these things are happening and I don't know anyone in my life that has Endo so I've nothing to compare it to. I have started taking my meds with orange juice to see if it helps, and I drink alot of water through the day, mainly because at the moment I feel full and sick all the time, and I force myself to eat. What is provera? Is there anything that you don't eat anymore that has helped or just the pro biotics? Xx
Provera is a prescribed progesterone only pill which stops my monthly’s completely I am waiting to go on the 3 month injection! They want to do a full hysterectomy but I have one daughters with learning difficulties and one under diagnosis and don’t have the luxury to be able to rest for 6 weeks! But this progesterone only pill has stopped 95% of my endo pains and bloating!! Really changed my life! The pro biotic is great for keeping you more regular and good gut health in general helped with my energy levels and the multi vits really do boost my energy! I have gone from life being a struggle to running round at 100 mph!! You are right about feeling lonely during it I don’t have any one around me with it! My diagnosis came as a shock as I thought I was living with ibs my whole life. Ref foods I have found high sugar things will cause a flare and cheese oddly! I do an intermittent fast so I don’t eat till 10 and stop eating at 6 and that has also been a huge game changer for me! Anything else you wanna ask just fire away! Nothing is embarrassing in this forum I promise you! The struggle is real xx
That sounds like what I am on I think? I take a pill every day with no breaks, it has reduced my bleeding but not stopped it completely, I struggle with hormones I find they make me feel really off, I get headaches terribly on them, and I had the coil but it left me with an infection that was so awful I had to have the coil cut to get it out safely. At this point I would happily have a hysterectomy if it meant I wouldn't be like this anymore, I'm so lucky to have two boys and I can't enjoy life with them because getting about is so painful and I get embarrassed as I have dropped to my knees in pain from nowhere, and If I did it while I was out and about or if it put my kids at risk I'd never forgive myself. But like you I would worry about the recovery time too. It's alot of pressure for families isn't it. Thank you for being so kind! Xx
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