Hi everyone. After over 30 years of pain and extreme bloating over the last two years, I’ve sadly no other option than to have a hysterectomy, I’ve been told. I’ve only ever had two laparoscopies in 2012.
They’re reluctant to remove my ovaries, stating all the health related issues it can cause, but I’m worried that high oestrogen levels (I had Pleomorphic LCIS removed last year from my breast) will continue to cause me pain if any lesions are left unexcised and I’m concerned about a recurrence of PLCIS. I have multiple cysts on both ovaries. My ovaries and tubes are stuck to my womb. I’m wondering if I have PCOS too.
Have any of you had a total hysterectomy with tubes and ovaries removed? How are you feeling post-op? I have a phone call with a HRT specialist soon before meeting with a (general) gynaecologist to decide on what will be removed.
Thanks so much for any advice you can give.
I have no personal experience of this but I do know that in studies the cahnce of endo reoccuring if the ovaries are left in is much higher. If the ovaries are removed the chances of it coming back are much reduced, I think the stats were 50 percent cahnce of it reoccuring if just the womb was removed and no reoccurance in 85 percent of women who had ovaries removed. So taking the ovaries away seems to really reduce the chances of it coming back.
Hi Avourneen , another great contribution. I have replied to another response to this post and I have mentioned my Mum and I know she would not mind me sharing her story. She had really bad endo, but managed to have 3 kids, she had a full hysterectomy late 30's/early 40's and no longer experiences any endo pain/symptoms. And that's what we are dealing with, it can and does work, but it's certainly not the 'cure' that I was led to believe until I was 37 (he was a really good consultant) 🌈
That is so true. I really feel consultants should be much more upfront about what an operation can and can't do. There still seem to be a lot of surgeons 9and some "endo activists') promising that one excision op to remove endo, or a hysterectomy can magically cure endo. I know a couple of people who have had great success stories and it has never come back but only a couple. It seems to be like a very difficult weed that just keeps coming back. We really need doctors to spot it earlier and researchers to find some more effective treatment and surgeons to be realistic about the prospects.