Im 29 now but had my TLHBSO February this year when I was 28. I had been on both Prostap and Zoladex prior and both had helped my pain but not enough for me to come off morphine. For me this was the final option which my consultant hoped would work but he couldnt be certain it would.
Well I can tell you it has given me my life back 10000%. I now take no pain killers and have no pain.
My recovery was long but that was due to me being so ill before my operation. I am still struggling to find the right dose of HRT but Im sure I will get there and it is a bit of trial and error.
If you want any more information then let me know happy to share the good the bad and the ugly. 😂 x
No worries. I felt the same when I had mine done as I was so young.
Honestly, it probably took about 5 months before I started to feel better and start to feel like my recovery was going the right. However, I was readmitted into hospital at 10 weeks post op which set me back and turned out to be due to no HRT causing extreme bone pain in my hips.
Im not on tibilone, I tried that initally when I was put on prostap and it didnt agree with my mental health (it made me suicidal). Ive been on Evorel estrogen only patches. Which had been fine until the past week when Ive started to get the symptoms of too much estrogen. But I think the dose just needs lowering. It is a tricky balance. Are you on HRT now???
Omg I hope everything went well for you. How are you feeling now?
Not really no being on HRT doesnt really make a difference to anything. I have put on a little bit of weight but I also went from not being able to eat a lot to suddenly eating 3 meals a day and unhealthy snacks in between. So whilst I would like to say it was the HRT it was definitely the food. 😂
Other than that I am finally getting back to my old lifestyle and doing things that over the past 2 years I would never have been able to do.
If I do too much I do get the dreaded swelly belly still and get some pains but it doesnt last long once ive rested.
Yeah I’m feeling surprisingly good, I find it get a bit of pain if I over do it, but other than that great!
That’s great that your able to start eating again properly, I know how it feels I was unable to eat stuff until I went on zoladex ( so I put on a few 🙈).
I’m looking forward to being able to test out the new body in terms on exercise etc. But I know that’s a while away yet.
I’m so pleased everything is going well with you! Have they said that the swell belly will eventually stop? Is that because everything inside is still healing? Xxxx
Yeahh Ive managed to go back to horse riding and running again which is brilliant along with returning to full time work.
It should settle over time but can take time. Im just over 8 months post operation. To be honest it is slowly getting better and happens less often now or only if I really over do it.
If im honest though I will take anything over the pain I was in.
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